It’s been 4 years since my transplant. I also don’t have a local nephrologist, but if needed I suppose I could go back to the last one that I saw before my transplant. She had told me at the last appointment before my transplant that Mayo would be keeping a close eye on me when I asked if I’d be seeing her again. I have a local PCP. There’s an open network between both providers. My labs are done at a local medical center every 3 months. They were done monthly for the first year, then changed to every 3 months. Then the BK virus showed up. My Cellcept was lowered to 500 mgs twice daily from 700 twice daily. Back to monthly labs. The virus slowly lowered in my labs and after many months disappeared.
I had a biopsy done shortly after my transplant because I was showing signs of rejection. Steroid infusions corrected that problem. Then I had another biopsy at 4 months and 1 year. The second year I didn’t have one because I’d forgotten to stop my daily aspirin soon enough. I haven’t had a biopsy since. I was scheduled for one at my 4 year checkup but she gave me a choice. She said that I was doing so well, she was fine with me skipping it since there are risks with it, too. All of my blood work, except glucose, comes back in the normal range.