Thank you for your kindness and concern. I will update when I have had a chance to see the liver specialist who is part of the study for primary biliary cholangitis, primary pancreatic cholangitis. I have just sent off a note to my PCP for a referral to her.
Yes, the process is frustrating as you can imagine. It's difficult to get that feeling, "no one wants to talk to me." But, I see my urologist tomorrow for a post op visit, and she usually has a way to make me feel better about everything. I find that female doctors are more sensitive to patient concerns as opposed to my male doctors.

I saw my PCP last week and a referral to a liver specialist has been made. I am encouraged that I will finally see a doctor who specializes in my condition. Currently, I am having a very difficult time eating. I have no appetite, but understand this is a symptom of my disease. I have always been slender, but now look rather anatomical as I have lost so much weight. Lately I have noticed that those in my apartment complex who I would run into and talk to on my daily walks now avoid me, and feel hurt by their reaction to me. I have always been self conscious about my appearance, always ensuring I am well groomed, my clothes are pressed and things of that nature. Now I am more aware of the amount of weight I have lost and people's avoidance of me is bothersome. Perhaps the nutritionist I will be making an appointment with will provide me with what types of food will help me most. While I try to maintain a positive outlook about my disease, I now find myself feeling rather fatalistic because there appears to be no treatment for my health condition at this point in time.