Post COVID: Anyone experiencing internal vibrations?

@frking Hi there. How annoying that must be. Do they continue in your lower body in addition to the upper, or have they traded off? How long have you been experiencing tremors?

Hello @vash. Two years is a quite a while to be feeling those sensations. I get buzzing and odd electric shocks from Central Sensitization Syndrome (CSS). Unfortunately Covid long haulers experience CSS also. Did you ever get a chance to watch the CSS video I posted by Dr. Sletten from the Mayo Clinic?

How do you manage the vibrations and tremors? Do you experience any additional symptoms?

Hello @vash. Two years is a quite a while to be feeling those sensations. I get buzzing and odd electric shocks from Central Sensitization Syndrome (CSS). Unfortunately Covid long haulers experience CSS also. Did you ever get a chance to watch the CSS video I posted by Dr. Sletten from the Mayo Clinic?

How do you manage the vibrations and tremors? Do you experience any additional symptoms?

@rwinney
With me these symptoms began under both feet n spread. It vibrates like a cellphone 24/7 then changes to a buzzing , humming sound like it sitting on a washing machine. Are any meds helping u

Well @vash, I've got to be honest, outside of nerve medication, which I'm on, and it does the best it can, meds are simply not going to do it all for us.

I posted the Mayo Clinic Dr. Sletten video about central sensitization so folks could have a better understanding of why vibrations occur. I the video he explains tactics as well of how to help yourself. I wish I had a miracle medication to offer but the truth is, there are none. I learned at the Mayo Pain Rehab Center the best way to counteract vibrations and other chronic pain and symptoms is to work hard at ignoring them through positive self-talk, distraction and exercise.

Working on our emotional and behavioral selves, in addition to "marching before we feel like it" by making exercise part of the plan, helps to show our symptoms that they can't rule us, and in the process, we slowly begin to retrain our brains and move forward with better self-management. I know it sounds crazy at first, but it makes sense and has worked for me over time with lots of practice.

What is your best self-care tactic while you're having vibrations? Does anything distract you or keep your mind off of them? How can you proceed forward after your medication has done the best it can for you?

I agree with you. Lots of positive reinforcement, meditation, walking, reiki, and also - holding / touching another person or pet. Many times just holding my husband’s hand or snuggling with my dog was helpful. The more you can keep symptoms at bay or from getting too intense the more your body learns to start calming down.

Well @vash, I've got to be honest, outside of nerve medication, which I'm on, and it does the best it can, meds are simply not going to do it all for us.

I posted the Mayo Clinic Dr. Sletten video about central sensitization so folks could have a better understanding of why vibrations occur. I the video he explains tactics as well of how to help yourself. I wish I had a miracle medication to offer but the truth is, there are none. I learned at the Mayo Pain Rehab Center the best way to counteract vibrations and other chronic pain and symptoms is to work hard at ignoring them through positive self-talk, distraction and exercise.

Working on our emotional and behavioral selves, in addition to "marching before we feel like it" by making exercise part of the plan, helps to show our symptoms that they can't rule us, and in the process, we slowly begin to retrain our brains and move forward with better self-management. I know it sounds crazy at first, but it makes sense and has worked for me over time with lots of practice.

What is your best self-care tactic while you're having vibrations? Does anything distract you or keep your mind off of them? How can you proceed forward after your medication has done the best it can for you?

@rwinney
I had to leave work last yr as the vibrations were very crippling. I also have electricity buzzing head to toe and my skin was completely numb. I try to meditate and walk outside or read when this symptoms slows down but it becomes so bad I have to be in bed whole day. At times I couldn't even have a proper meal or shower that's how bad it gets. I have taken gabapentin yesterday but it worsened my symptoms. The I went to yesterday Dr says it's small fibre neuropathy...

Hi @vash - Did your neurologist perform a skin punch biopsy to diagnose small fiber neuropathy? That would certainly help explain your symptoms. I too have SFN and understand how difficult it can be. I'm sorry you had to leave work last year. Are you able to work presently?

Keep in mind nerve medications take time to build up and achieve an effective dose. How long have you been taking gabapentin?

Please do your best to fight being in bed all day, Vash. I realize you hurt, and are trying with meditation and walking, but being in bed all day doesn't do you any favors like you may think. Have you tried working on proper breathing techniques throughout the day, not just when you really need them? What small tasks can you keep busy with to keep your mind occupied?

@rwinney
Hi Rachel
I try my best to do chores at home. However my mum's been diagnosed with cancer so I'm taking care of her now but if I get a work online/home job that will work out good for me. No biopsy was done yet. Iv done MRI,xray,tests. The gabapentin I took 100mg one time and it made the vibrations worse so I'm scared to try more.