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Does anyone else have MGUS?

Blood Cancers & Disorders | Last Active: Sep 19 12:31pm | Replies (818)

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@becky1024

Mitten1, I was just rereading your post again and judging your condition against me. So I looked at my own diagnosis of Kappa light chain IgM. You and I are in the same type of situation, that being good and bad. IgG is the least likely to progress to cancer, my IgM is the most likely. My Kappa classification is the lesser of the two to be dangerous. Your Lambda is more likely to be aggressive. So your IgG progressing to SMM or MM will need to be watched for a sudden burst of progression. My IgM is progressing to a rare form of NHL and an even rarer form of WM. One that is slowly progressing but also is incurable and less likely to go into remission. I like to use percentages rather than decimal points in watching my numbers. My M spike jumped 25% between May and September in 2021. Then between September and December 2021 , my M Spike jumped another 100%. So between May and December it jumped 125%, now that fact makes an impression on me or you, compared to saying it jumped 3 tenths of a point, right. So look at your results and judge it buy percentages to get the true affect of your progression.

In case you didn’t know this fact, vitamins can thin your blood by weakening the stickiness of platelets. Also, garlic is another danger to platelets. I had to stop using them before my abdominal aneurysm repair to keep me from bleeding to death during a long delicate procedure. Hope things are working out for you. Keep in touch.

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Replies to "Mitten1, I was just rereading your post again and judging your condition against me. So I..."

Hi Becky 1024,
Thank you for sharing and I did not know about the vitamin and/or garlic. Definitely, good to know. It certainly addresses why they want to see every (3) months for the past two years. My IGG has been in the low 2000s sometimes higher, but generally low 2000s. My FLC ratio is now 2.06 and my Lambda is now 10.6 with my Kappa 21%. It was a little higher but came down a little since June of this year. Believe it or not I am more concerned with my bone marrow being hypocellular (not making enough cells) as I am thinking would I need a BM transplant down the road as I get older. I want to know prepare myself if you know what I mean. Thank you again for the advice.

Mitten1

Hi Becky,
Quick question...is it all vitamins in general or just certain ones?

Mittens1