@Colleneyoung and hnipper, your posts have been informative and helpful. Collene, as you know from my prior posts, my MGUS is progressing towards Non Hodgkin’s Lymphoma or Waldenstrom Macroglobulemia. After reading these posts today, my prognosis seems worse than I expected. Since my NHL is still progressing, new symptoms are happening that now worry me. One complication is my lymph nodes have swollen. At first the nodes were above midline, both under the jaw, both at the bottom of the neck and in both armpits. They were all firm but not really sore. Then within a week, the right crotch one began to act up. Because it’s below midline, which seems to be a bad indication of progressing, should I be concerned?

I reported it to my Oncologist/Hematologist but never received any guidance from her. To complicate matters, my Lymphatic system below my knees has been blocking up. It gets so pronounced, you can even see each blocked juncture. Then my lower legs swell up, especially the left one. My B cells are way down, my lymphocytes are below normal, my neutrophils are above normal, the T cells seem normal but my white cells are up but my platelets are close to bottoming out, plus I’m anemic. Am I in trouble, since my doctor seems unconcerned with the numbers. What should I look for, symptom wise, to determine if my NHL is progressing? Any advice from either of you would be much appreciated. @becky1024