Connect
← Return to Hodgkin Lymphoma was stable, now new activity
Discussion
Hodgkin Lymphoma was stable, now new activity
Blood Cancers & Disorders | Last Active: Jun 16 3:02pm | Replies (24)Comment receiving replies
As I wrote in another thread, we are adding bendamustine to my nivolumab regimen. Both oncologists did not think another biopsy was needed, and seem sure that the new node is Hodgkin Lymphoma, Here we go!!!!
Replies to "As I wrote in another thread, we are adding bendamustine to my nivolumab regimen. Both oncologists..."
Well, long overdue update to my situation. I've been on the bendamustine + nivolumab therapy for my nodular sclerosing Hodgkins since 2022, and my tumors have been slowly shrinking, but not enough to cry "remission!" Until this week when my doctor discontinued the bendmustine because my platelet count has dropped to 48, from the usual high 70s. (Yep, I know that even the 70+ range is low) But now I can tell I am clotting slowly from my fingersticks!
What now, you say? It's a waiting game to watch the platelet count recover for the next few weeks, we hope. I am also going to be consulting with my physicians about alternative courses of treatment, if any. In sum, I feel no different from before, just concerned about the future.
Connect
Well the first installment of bendamustine (over two days) went well. So far, the only side effect has been mild fatigue on the days I received the infusions. Today - one day out - I seem to have more energy and alertness. Will have several more infusions of bendamustine over the next few months and then another PET scan to assess progress. Here's hoping!!!! What a ride this has been!