@mommatracy5 , I understand your worry. Feeling worried is quite natural. I was upset also when I found out, and so was my family. I still feel concerned before each test. Now after a few years of no progression, I see my worry has only added more stress and un happiness in my life...for evidently, no good reason. I'm still fine, nothing has changed, so why would I entertain such worrisome thoughts. I'll deal with whatever happens, if and when it happens. I've been through sooooo many other types of medical tests, and a few surgeries that all looked super scary...but each turned out either negative for disease, or something was caught before it developed. It was always a great relief and happy, thankful ending...I could kick myself for ever worrying. I'm not doing that anymore!! Again, I understand your concern, and 49 is young...that may be a plus in your case. Kick out the bad thoughts, and continue your testing...then go from there. Please enjoy each day...worry robs us of joy.

@mommatracy5 Tracy, please pull up a chair, and a cup of coffee or tea. Ice water if you prefer, or lemonade. Let's chat.

Getting a diagnosis that takes us by surprise, and makes us fearful, is sure to put a cloud over our day. Been there, done that, got the t-shirt. Sometimes we have an inkling something isn't right, other times, it sneaks up on us. Let's focus on what happened to you. Now, recall that each of us is different. Our life story, our medical history, how we got to where we are today.

Our bodies are miracle machines. All those systems working independently and then together, to keep us going! Getting the MGUS diagnosis may not lead to anything more. For many, it is simply that, and monitored for years to come. It is important that you find confidence in your medical team, that you feel they listen to you and won't lead you astray. Educate yourself, but do not dwell on the negative. Be your own best advocate. Develop or continue healthy habits, including exercise, eating, relationships, hobbies, work. Find what is meaningful in your life. If you feel the need for help to cope with matters, emotionally or mentally, please do reach out to a trained professional.

I was diagnosed with MGUS in 2017. Because I am an overachiever, and just can't let well enough be left alone, I advanced into smoldering myeloma in 2018, then multiple myeloma kappa light chain in 2019. But that is definitely not how the big majority of people go, okay?

I guess what I am saying, in a nutshell, is to not get your head and heart too wrapped up in the words of your diagnosis. Follow your doctor's advice to you, and don't fail to give your input to them. There are a lot of important things in life to consider, and we simply cannot put a lot of energy into something we cannot control. Please be gentle on yourself. If this resonates with you, let me know.
Ginger