Hi Colleen. I am located in Piedmont NC and have treatment at Wake Forest Baptist Cancer Center. I was diagnosed with MM in August 2013, almost 3 years ago. My NP was actually the one who did a lot of research and blood tests and decided I need to see a hematologist. I thank God for her every day. My bone scan showed several tumors in different areas of my body: skull, hips, femur and ribs. I was started on Revlimid and dex, tried to do stem cell transplant at Duke. That didn't go well. I ended up in the hospital with multiple infections and kidney failure. All my docs decided I was not a good candidate for stem cell transplant. I have been hospitalized several time for UTIs, pneumonia and bronchitis due to poor immune system. A year ago, I was started on Velcade injections every 2 weeks along with dex. My last hospitalization was May 2015. YEAH! Because my blood work has been looking so good, my doc is considering reducing the Velcade to every 4 weeks for a maintenance dose, with close watch on the numbers. I do have a Zometa IV every 4 weeks for bone health. There is of course the brain fog (which is so embarrassing and aggravating), along with headaches, back pain, and low energy. But, all in all, for having the big "C", I do pretty well. I am blessed with wonderful family and friends. It could definitely be worse.

how do I get on the MGUS support group board???

Hi @lisa54, the MGUS related discussions can be found in the Cancer group here: https://connect.mayoclinic.org/group/cancer/?tab=discussions