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Traveling with PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jul 9 9:18am | Replies (16)

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@kmb181

I had been doing okay on 6mg., ( maybe around a level 3 in pain). But, we just moved, and I pushed myself too much. I am really feeling it the last 3 days, at around a 7-8. Couldn’t get comfortable to sleep last night. And, nausea.
I have a call in to my Rheumatologist. Hopefully she will get back to me soon.
I am feeling like I have had a huge set back. This seems to keep happening. Very disappointing.
I lost 13 pounds, I really do not want to have to go way up again on my dose.😞

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Replies to "I had been doing okay on 6mg., ( maybe around a level 3 in pain). But,..."

Sometimes at the low doses just going up 1/2 to 1 mg can make a difference. If it were me and my PMR pain flared up to a 7 or 8, I might just bump up my dose to half of my previous taper. I found this helped me keep on my tapering schedule without going all the way back to my previous dose.

@kmb181 Don't be too discouraged. You had a big event (your move) and pushed yourself too much. If you feel this is a flare, general recommendation is to increase your dose 5 mgs. for 5-10 days and then go directly back down to where you last felt good. Once you are stable again, try not to yo-yo. Only reduce your dose when you feel good and then only by 10% (or less). Even with a good rheumatologist you have to figure out a lot of this on your own by listening to your body.