Lichen Sclerosus: Any other women dealing with this disease?

I’ve had this for several months. I was diagnosed my gynecologist. I started using intravaginal estradiol cream to help with atrophy and vaginitis. Still having issues but the itching has improved.

Lichen sclerosis ant women dealing with this ?

Hello. I am a 54, almost 55 year old woman. about two months ago i was referred to a gyn office from my pcp for what was suspected to be recurring UTI's. i had a really bad one last thanksgiving in the ER. i was fine for about a month and a half then i was still having symptoms and it was confirms and no antibiotic worked not even bactrim. When i went to the Gyn's office i would have chosen to see a gyn. i saw a nurse practioner but she was nice and i felt she was knowledgeable and very thourough. she did a exam then said i had Vulver Lichen SClerosus. i had her repeat it as i had never heard of it before. she handed me handouts on it basicly decribing what it was and how to treat it. i read most of it but i guess not all of it. i was told it was a skin condition, autoimmune and it happens to women who have hypothyroidism like myself. she gave me a prescription for a estrogen cream, i think it was called estrogial and a ointment but said only use it twice a week. but the following morning after using it i would only itch more. the other night it was not so much itchy but just felt uncomfortable kinda painful. i did what i normally do i post on on of my facebook groups. i had one person say be careful cause she had a friend who thought she had psorias and she found out she had vulver cancer! what? i never even heard of vulver cancer. then i did a search and i saw there is a percentage although small that this can turn into vulver cancer. my anxiety was in overdrive. other people said did you have a biopsy and when i said no i message the nurse practioner all freaked out. she messaged me back saying she was sorry i was so worried and said somone would be calling me about giving me a appointment with one of the actual doctors. the did call me yesterday morning and offered me a appointment for monday morning fairly early. i was greatful to get in so quick. but im so stressed. im worried what their gonna say, if they will give me a biopsy or what they will put me on to treat. i read most people are given steroid cream the estrogen cream i think was the wrong thing and only made me worse. does anyone here have it? should i be worried? lately i have been using cereve there which helps a little with the itching. some discharge (brownish- redish discharge small sometimes) id really like to talk to someone. i also have other health problems and im just scared. i have hyperplasia with most likely autoimmune gastritis as well as having my gallbladder out so i cant eat much either an other health issues. so i have two things that have a small things that have a small chance of turning into cancer so yeah my anxiety is in overdrive. anyone who can talk to me would mean s much. thank you.

Hello. I am a 54, almost 55 year old woman. about two months ago i was referred to a gyn office from my pcp for what was suspected to be recurring UTI's. i had a really bad one last thanksgiving in the ER. i was fine for about a month and a half then i was still having symptoms and it was confirms and no antibiotic worked not even bactrim. When i went to the Gyn's office i would have chosen to see a gyn. i saw a nurse practioner but she was nice and i felt she was knowledgeable and very thourough. she did a exam then said i had Vulver Lichen SClerosus. i had her repeat it as i had never heard of it before. she handed me handouts on it basicly decribing what it was and how to treat it. i read most of it but i guess not all of it. i was told it was a skin condition, autoimmune and it happens to women who have hypothyroidism like myself. she gave me a prescription for a estrogen cream, i think it was called estrogial and a ointment but said only use it twice a week. but the following morning after using it i would only itch more. the other night it was not so much itchy but just felt uncomfortable kinda painful. i did what i normally do i post on on of my facebook groups. i had one person say be careful cause she had a friend who thought she had psorias and she found out she had vulver cancer! what? i never even heard of vulver cancer. then i did a search and i saw there is a percentage although small that this can turn into vulver cancer. my anxiety was in overdrive. other people said did you have a biopsy and when i said no i message the nurse practioner all freaked out. she messaged me back saying she was sorry i was so worried and said somone would be calling me about giving me a appointment with one of the actual doctors. the did call me yesterday morning and offered me a appointment for monday morning fairly early. i was greatful to get in so quick. but im so stressed. im worried what their gonna say, if they will give me a biopsy or what they will put me on to treat. i read most people are given steroid cream the estrogen cream i think was the wrong thing and only made me worse. does anyone here have it? should i be worried? lately i have been using cereve there which helps a little with the itching. some discharge (brownish- redish discharge small sometimes) id really like to talk to someone. i also have other health problems and im just scared. i have hyperplasia with most likely autoimmune gastritis as well as having my gallbladder out so i cant eat much either an other health issues. so i have two things that have a small things that have a small chance of turning into cancer so yeah my anxiety is in overdrive. anyone who can talk to me would mean s much. thank you.

The treatment for lichen sclerosis is a cortisone cream or ointment; often clobetasol. It is not cancer.

Although should not leave lichen sclerosis untreated. Can lead to vulvar cancer and can progress and cause much discomfort.

Hello. I am a 54, almost 55 year old woman. about two months ago i was referred to a gyn office from my pcp for what was suspected to be recurring UTI's. i had a really bad one last thanksgiving in the ER. i was fine for about a month and a half then i was still having symptoms and it was confirms and no antibiotic worked not even bactrim. When i went to the Gyn's office i would have chosen to see a gyn. i saw a nurse practioner but she was nice and i felt she was knowledgeable and very thourough. she did a exam then said i had Vulver Lichen SClerosus. i had her repeat it as i had never heard of it before. she handed me handouts on it basicly decribing what it was and how to treat it. i read most of it but i guess not all of it. i was told it was a skin condition, autoimmune and it happens to women who have hypothyroidism like myself. she gave me a prescription for a estrogen cream, i think it was called estrogial and a ointment but said only use it twice a week. but the following morning after using it i would only itch more. the other night it was not so much itchy but just felt uncomfortable kinda painful. i did what i normally do i post on on of my facebook groups. i had one person say be careful cause she had a friend who thought she had psorias and she found out she had vulver cancer! what? i never even heard of vulver cancer. then i did a search and i saw there is a percentage although small that this can turn into vulver cancer. my anxiety was in overdrive. other people said did you have a biopsy and when i said no i message the nurse practioner all freaked out. she messaged me back saying she was sorry i was so worried and said somone would be calling me about giving me a appointment with one of the actual doctors. the did call me yesterday morning and offered me a appointment for monday morning fairly early. i was greatful to get in so quick. but im so stressed. im worried what their gonna say, if they will give me a biopsy or what they will put me on to treat. i read most people are given steroid cream the estrogen cream i think was the wrong thing and only made me worse. does anyone here have it? should i be worried? lately i have been using cereve there which helps a little with the itching. some discharge (brownish- redish discharge small sometimes) id really like to talk to someone. i also have other health problems and im just scared. i have hyperplasia with most likely autoimmune gastritis as well as having my gallbladder out so i cant eat much either an other health issues. so i have two things that have a small things that have a small chance of turning into cancer so yeah my anxiety is in overdrive. anyone who can talk to me would mean s much. thank you.

I know I use clob and the estrogen cream only made it worse. On my way to gyn now I'm also having bloody discharge. Hoping it's just a bad uti.

The treatment for lichen sclerosis is a cortisone cream or ointment; often clobetasol. It is not cancer.