← Return to Lobular Breast Cancer: Let's share and support each other

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@cindylb

@jkh Sorry about your struggles. I can relate to much of your post. I 'thought' I'd beat the cancer struggle when I was diagnosed with only Stage 1 cancer. It was a good sign but I too developed lymphedema and had a bout with cellulitis and went into sepsis about 3 years ago. A very scary and unexpected situation. I struggle daily with the lymphedema and have joined the Lymphedema Action Network where they have multiple video presentations and informative emails. I highly recommend signing up for that. I opted not to use the AI drugs - they all had severe side effects for me but I am quite a bit older than you and was diagnosed about 5 years later in life than you. I guess cancer always finds a way of reminding you it's there no matter what you do so we have to try to make peace with that (not easy). Interestingly, I have many of the 'side effects' of the AI's now anyway due to aging....in fact my blood work shows I have little, if any estrogen, no progesterone (guess I never had much of that to being with) and little testosterone....so no hormones to feed the cancer. However, not having those hormones means - weight gain, depression, aching joints and for me a complete drying of my body (eyes, hair, mouth and....unfortunately my vagina - all of which presents challenges). But, I'm here and so far no return of the cancer so I'm thankful for that. Hugs to you. It sounds like a lot to cope with day to day.

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Replies to "@jkh Sorry about your struggles. I can relate to much of your post. I 'thought' I'd..."

Oh how I relate to the drying up! I even had a procedure called the Monalisa to bring moisture back to my vagina. It is a laser treatment. It was successful but only temporary. I suppose when you keep taking medicine to block the hormones it was inevitable. Thanks for sharing a bit of your story.