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Diagnosed with AL Amyloidosis. What can I expect?

Blood Cancers & Disorders | Last Active: Mar 28 1:00pm | Replies (44)
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@azlatina

Hi @colleenyoung ,
The links dont seem to work any longer. Are there updated ones we can view about amyloidosis?
Thanks,
Michelle

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Replies to "Hi @colleenyoung , The links dont seem to work any longer. Are there updated ones we..."
Rosemary, Volunteer Mentor | @rosemarya | Jul 30, 2022

@azlatina, Please accept my Welcome to Mayo Connect. I could not open that link about Amyloidosis either. However, even though I have no experience with Amyloidosis', I want to I want to share some information with you:
Here is the link to information about Amyloidosis from Mayo Patient Care and Health Information :
https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178
And here are 2 features that might give you some insights, even though they are not recent:
https://newsnetwork.mayoclinic.org/discussion/what-is-amyloidosis-and-10-signs-you-might-have-it/
https://intheloop.mayoclinic.org/2017/10/31/a-new-double-take-second-opinion-points-to-future-of-hope/
Michelle, Have you or a loved one been diagnosed?

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Colleen Young, Connect Director | @colleenyoung | Jul 31, 2022

Thanks for pointing that out, @azlatina. Unfortunately that webinar is no longer available. However, here are a couple of Youtube videos with Mayo Clinic cardiologist Martha Grogan, MD, and hematologist Prashant Kapoor, MD.

Amyloidosis: What you need to know - Mayo Clinic


Cardiac Amyloidosis - Treatment Options

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