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Osteoporosis of the spine and Boniva

Osteoporosis & Bone Health | Last Active: Oct 25, 2023 | Replies (12)

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@betterhealth

Hello, I am wondering if anyone else has had a problem with kidney disease and as a result had to be taken off of their osteoporosis medications? If you did, did removal of the osteoporosis med from your body improve your kidney function? For me, I was diagnosed with Osteoporosis about 10 years ago at age 54. Since that time, I have used Forteo, Prolia, and now Tymlos. All 3 drugs made me very weak and dizzy. In December 2021 Prolia resulted in MRONJ or destruction of jawbone. As a result, I can no longer use any bisphosphonates drugs. Now, recent Blood tests show I have developed elevated Creatine Levels or Moderate Kidney Disease. I am not overweight, not diabetic, don't smoke, don't drink, I eat lots of fresh fruits and vegetables, and drink lots of water. I am wondering if osteoporosis meds have affected my kidneys and that is why all meds made me weak & dizzy as my Kidneys were not able to filter the medication from my bloodstream? I will visit with my doctor again in 2 days about this problem to see if she wants me to stop Tymlos injection in order to control progression of Kidney problem. Thanks for listening. Best Wishes for good health!

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Replies to "Hello, I am wondering if anyone else has had a problem with kidney disease and as..."

@betterhealth I am on my 17th month of Tymlos. I am scheduled to be on it for 24 months which is the maximum and I would love to be able to go the full time because some studies show a great improvement between the 18th month and the 24th month, but I am wondering if some problems I am having could be related to Tymlos.

I am not weak or dizzy from Tymlos, or at least no more than usual, but do have very achy legs. I am finding that I can't exercise for as long or as vigorously as I had been able to. I wish I had kept some type of journal because I'm not sure when my upper legs got so achy, I know they were not like that a couple of years ago. I am also having a problem with fluid retention and wondering if that could be Tymlos related.

I have a doctor's appointment this week and may have developed congestive heart disease. I have not seen that as a side effect of Tymlos but I do know of one other person who got that after being on Tymlos. Of course that could easily be coincidental.

Every drug that we use has benefits but also brings some problems with it. It feels like we can't win. This getting older stuff is not fun.
JK