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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
Blood Cancers & Disorders | Last Active: Aug 3 1:59pm | Replies (203)Comment receiving replies
@becky1024 Good for you for staying up-to-date with your blood values! I do the same, and actually keep a spreadsheet detailing the source of the blooddraw and dates, since they are taken both at my oncologist's center and a commercial lab. I keep the range values for each draw location in a separate item, as their processing machines are different.
Being aware of trends in labwork is important to establish where a patient is in a diagnosis, rather than one set of values. I have found this out as we muddle through both multiple myeloma treatment and end stage renal failure [not associated with the myeloma]. Where I am on a chemo cycle affects my labs from the kidney doctor.
Ginger
Replies to "@becky1024 Good for you for staying up-to-date with your blood values! I do the same, and..."
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Ginger, I’m so sorry to see you have advanced so far with your condition. Thankfully you have an attitude that helps you to keep things in order to check your progress. I’m lucky to be with a major hospital that tests, teaches, includes patient input and a host of other novel ideas. One is to run a internet based medical records site called “My Chart.” It’s everything you want to know about your medical needs, everything! If this is any comfort to you, think of my poor body and the battles it’s fighting and losing. I keep saying I’m a freak of nature because so many genetic birth defects.
Did you ever hear the saying “You can’t see the forest for the trees?” Meaning if you’re in a forest, you can’t see anything because of all the trees around you. One birth defect almost killed me at 6 months old. That same birth defect is still with me causing misery for me every day. I was looking at years of test results, hundreds of them trying to see if my new pcp could figure out what caused the birth defect. I’m googling one question after another and then I asked the correct question and BINGO!!!
OMG I cried out, that’s it, that’s it, it’s got to be. Then I’m saying it can’t be, it can’t be true, omg it has to be. For almost 79 years I’ve been tormented with this monster and I finally know what genetic defect caused it. Then I see a statistic of how rare this defect is, it can’t be, it can’t be, Im nearly in tears I’m so happy to have finally found the culprit that has destroyed my life.
I do more research, check my Bloodwork for clues. Then I see them, its been staring me right in the face. Like the trees in that forest, all those test results were there, the answer was right there but I didn’t put all the pieces to the puzzle together until about an hour ago. It’s all right there in black & white, all the symptoms of this defect are right there. If I can convince my PCP it’s true, I’ll be one of rarest people on the planet, me and my whole family. According to the NORD website for Rare Diseases, only 15 families in the entire world are affected by this genetic defect. I know my mother had a number of the same health issues I have. That’s why I keep saying, It can’t be true but test from multiple different doctors for conditions not related all point to prove I am a freak of nature.