Small Fiber Neuropathy discouraged

My heart is with you. Hugs

I saw my endocrinology doctor. I have seen him onging, before I was
diagnosed small fiber neuropathy, for thyroid issues. My small fiber
neuropathy was caused by a discontinuation of a medication and not
pre-diabetes as far we can tell. I was being assessed for prednisone
withdrawal.

He ordered a myriad of blood tests. He is keeping me on 6.5 mg of
prednisone. In order to do accurate cortisol tests I would have to go off
of prednisone, which is not recommended. Also, the high dose prednisone
was masking adverse side effects of gabapentin. This being dizziness,
nausea, and overall low quality of life. Gabapentin was a page of hell for
me. As I have said previously, I had severe side effects. Then it was
represcibed, only to have those side effects again. Because of the severity
of Gabapentin side effects, Lyrica is not recommended. I will stay on 6.5
mg of prednisone until gabapentin is tapored. Other pain treatments will be
started, then more taporing of prednisone. I still only sleep between four
to five hours a night.

I walk a mile a day, do breathing exercises, and am on a low carb diet. I
pray.

I need encouragement.

Im discouraged.

I feel the a exact same way!!!!!! I won't stop trying to feel better and get pain free!!!!! 🙏🏼

I am saddened today. An old friend of mine edits a medical journal. She wanted to write my story. No name, address or identifying information. Just my journey. My records were going to be completely cleansed of identity. However, I was told I couldn't do this because of liability. I cant even speak of my journey. I have to just be quiet. Im not even worth a story. I never pursued legal isues because they were med errors. My two current doctors are great. They listen and make me feel self worth. They treat me like Im more than a med error or embassment. They are working very hard. Thank you for listening. Its just a rough patch. I will find another outlet. Maybe Ill draw. Right now, its time for my walk.Take care everyone

I just had a pain reaction to lyrica like a 10 in pain. Your story is helpful thanks for sharing. Hang in there. I am too adding a new drug Wellbutrin at night. tramadol in the day from the pain doc.

Tell me how the Wellbutrin works. If it helps with your pain, I may ask my internist about it.

low dose cymbalta helped until I went to 30 mg. 1% can get irregular bleeding. Yep I had GI bleed so that's why I am trying something weaker. I had tube the 1% in the over 50 age group. Not giving up!

I bet the Wellbutrin works for you.

You might not get published in a medical journal, but you sure can contribute on here to help others. By sharing ideas on tests, treatments, things we may be overlooking, and remedies found that help you cope and manage your situation, you’re helping so many others on here who are enduring this same vague diagnosis and trying to borrow from all the experiences out there. That helps lessen our load in trying to find what works best for us individually, and hopefully help each other get maximum comfort as soon as possible to make the best of our situations and enjoy life best we can. So keep your chin up, there’s plenty ways to help folks through this forum! Hugs

Thank you, Maybe I will start sharing bits of my story. It's a story of of speaking and no listening. Rocking and screaming into a pillow. Being terrified because of no diagnosis. Then, everyone makes mistakes. I do not have pain free moments. Im struggling to tapor off medications. I almost lost everything, but I didn't. I work hard at living. Because life is a gift.