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Small Fiber Neuropathy discouraged
Neuropathy | Last Active: Apr 13, 2023 | Replies (124)Comment receiving replies
I am saddened today. An old friend of mine edits a medical journal. She wanted to write my story. No name, address or identifying information. Just my journey. My records were going to be completely cleansed of identity. However, I was told I couldn't do this because of liability. I cant even speak of my journey. I have to just be quiet. Im not even worth a story. I never pursued legal isues because they were med errors. My two current doctors are great. They listen and make me feel self worth. They treat me like Im more than a med error or embassment. They are working very hard. Thank you for listening. Its just a rough patch. I will find another outlet. Maybe Ill draw. Right now, its time for my walk.Take care everyone
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You might not get published in a medical journal, but you sure can contribute on here to help others. By sharing ideas on tests, treatments, things we may be overlooking, and remedies found that help you cope and manage your situation, you’re helping so many others on here who are enduring this same vague diagnosis and trying to borrow from all the experiences out there. That helps lessen our load in trying to find what works best for us individually, and hopefully help each other get maximum comfort as soon as possible to make the best of our situations and enjoy life best we can. So keep your chin up, there’s plenty ways to help folks through this forum! Hugs