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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
Blood Cancers & Disorders | Last Active: Jan 1 2:01am | Replies (172)Comment receiving replies
@becky1024 I have been on low dose chemo since last August. The low dose is because I also have unrelated kidney failure.
I attached what Mayo Clinic has to say about Waldenstrom Macroglobulemia, but I'm guessing you have already read it! My doctor tested for that while diagnosing my multiple myeloma. It sounds like your family may have a genetic component involved, given your brother's history.
Ask your doctor if you can use benadryl or a similar antihistamine to help calm down the amount of itching. Does an oatmeal bath help to relieve the surface itching? Meditation? Distraction of some sort? I have had itching bouts, too, and even just putting a rubber band on my wrist and snapping it instead of itching has distracted me enough at times. Self-talk "okay I know this is part of my disease, but I won't let it get the best of me!"
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Believe it or not, Benadryl almost killed me with one pill. Like I say to all my doctors, I’m a freak of nature. Because of a genetic heart defect causing all kinds of problems, a 1 on a million defect, Each chamber of the heart has two pathways for the pulse electrical signal to pass thru, a main and a secondary. After 3 heart attacks in less than a year, the main pathways in the Right and Left Ventricles and the pathway between them and broken. That means the whole bottom of my heart is only working thru the secondaries. If any of one of those three break, I’ll drop dead immediately between the first half and the second half of the heartbeat. So I am forbidden to take any medications that will slow the heartbeat up, which is what Benadryl does. What that will do is slow the heart up so much, it’ll stop. Great huh! Nothing like being a freak of mature. I had a first cousin with the same problem. Then one day he was going into his house. He had one foot inside the house and the other on the porch and dropped dead. The autopsy said he was dead before he hit the floor, that’s what I have to look forward too.