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MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Blood Cancers & Disorders | Last Active: Aug 3 1:59pm | Replies (203)
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@becky1024

Thank you for the suggestions but my bad guys are headed towards a very rare form of Waldenstrom Macroglobulemia. My older brother did die from
MM caused by Agent Orange in Vietnam. How bad are your blood tests? Mine just jumped 100% for the worst, I get the next one in November. Take care and I hope for the best for you Ginger.

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Replies to "Thank you for the suggestions but my bad guys are headed towards a very rare form..."
Ginger, Volunteer Mentor | @gingerw | Jul 28, 2022

@becky1024 I have been on low dose chemo since last August. The low dose is because I also have unrelated kidney failure.

I attached what Mayo Clinic has to say about Waldenstrom Macroglobulemia, but I'm guessing you have already read it! My doctor tested for that while diagnosing my multiple myeloma. It sounds like your family may have a genetic component involved, given your brother's history.

Ask your doctor if you can use benadryl or a similar antihistamine to help calm down the amount of itching. Does an oatmeal bath help to relieve the surface itching? Meditation? Distraction of some sort? I have had itching bouts, too, and even just putting a rubber band on my wrist and snapping it instead of itching has distracted me enough at times. Self-talk "okay I know this is part of my disease, but I won't let it get the best of me!"
https://www.mayoclinic.org/diseases-conditions/waldenstrom-macroglobulinemia/diagnosis-treatment/drc-20359986
Ginger

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