I found someone that has a similar story. My BFS has been going on and off for 17 years. I am in a flare up that has now lasted 10 months. Only thing that they discovered recently was Neuropathy in my feet. Every time I get a flare up of BFS my feet hurt (achy/burning) when I stand or walk. The twitching is everywhere and I wake up stiff as can be. I too worry about it and if it does not go away. Taken Gabapentin, but have not seen much success with it.