1. < Osteoporosis & Bone Health

About to start Prolia: What's your experience?

Posted by Jefesitachica @npolanco, Feb 3, 2021

Dr wants for me to start Prolia. I have been researching. Would like to know if anyone in this group is taking. Worry about side effects.

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hlp123 | @hlp123 | Jul 21, 2022

It is wonderful that we can support each other and learn all of this valuable information from the experiences each of us has in our journey to treat our osteoporosis. I understand that each of us reacts differently to these drugs. I am entering my sixth month on Reclast after refusing to get another injection of Prolia. I have constant muscle pain in both arms, but nothing like the pain in my muscles and joints that I was experiencing after my second injection of Prolia. I have not found any way to relieve the muscle pain except to reduce it by taking tylenol every six hours and ice packs. I do also rub aspercream on my arms. I am hoping the muscle pain diminishes in time. Please continue to share your experiences and knowledge. I really appreciate the support !!!!

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gretchen1018 | @gretchen1018 | Jul 22, 2022

I use Tiger balm that I got from CVS. It's menthol and helps. Not the one that says red on it. The dye stains clothing. Also use salonpas patches or ice/heat.

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1 reply
hlp123 | @hlp123 | Jul 25, 2022
In reply to @gretchen1018 "I use Tiger balm that I got from CVS. It's menthol and helps. Not the one..." + (show)
@gretchen1018

I use Tiger balm that I got from CVS. It's menthol and helps. Not the one that says red on it. The dye stains clothing. Also use salonpas patches or ice/heat.

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I had not heard of Tiger balm. I will get some and try it out. thank you so much for sharing this information !

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hlp123 | @hlp123 | Jul 25, 2022
In reply to @windyshores "My doc said he does not want to prescribe Prolia for me. Depending on DEXA scores..." + (show)
@windyshores

My doc said he does not want to prescribe Prolia for me.

Depending on DEXA scores and fracture history, the bone-builders are the best choice AND they work better if you have not taken Prolia or a bisphosphonate first, according to studies.

You can take Evenity after Forteo or Tymlos but not the other way around.

I chose Tymlos because the dose is adjustable and I ramped it up from 2 clicks to 7 over a few weeks to minimize side effects.

Tymlos and Forteo both have financial assistance programs if you meet eligibility requirements.

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Thank you so much for sharing this information. I have read your comments before and you seem very well informed ! I sure wish I had known this over a year ago when I started Prolia. I appreciate all of the wisdom you send on. Thank you

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1 reply
windyshores | @windyshores | Jul 25, 2022
In reply to @hlp123 "Thank you so much for sharing this information. I have read your comments before and you..." + (show)
@hlp123

Thank you so much for sharing this information. I have read your comments before and you seem very well informed ! I sure wish I had known this over a year ago when I started Prolia. I appreciate all of the wisdom you send on. Thank you

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@hlp123 again. my comments were made without knowing your DEXA scores or fracture history. Just be careful when you stop Prolia to avoid an abrupt loss of bone density and resulting fractures. Some apparently stay on Prolia long term. Some go on to Reclast. Some go on Tymlo, Forteo or Evenity. I did not intend to make you worry about what you are doing!

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1 reply
zev | @zev | Jul 25, 2022
In reply to @sweetpea60 "I recently was told that I needed a Prolia shot for osteoporosis. I have read horrible..." + (show)
@sweetpea60

I recently was told that I needed a Prolia shot for osteoporosis. I have read horrible side effects about this shot. I trust my dr. and he assures me that it is safe and he hasn’t had an issues with giving it. I’m really struggling with what to do.

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I took prolia for 3 and a half years and started having trouble with my jaw. I stopped the prolia and am taking a sort of fosomax for 6 months, then will stop all this dangerous medicine and use more nuts and grains. My jaw bothers me less but the damage is done.

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hlp123 | @hlp123 | Jul 25, 2022
In reply to @windyshores "@hlp123 again. my comments were made without knowing your DEXA scores or fracture history. Just be..." + (show)
@windyshores

@hlp123 again. my comments were made without knowing your DEXA scores or fracture history. Just be careful when you stop Prolia to avoid an abrupt loss of bone density and resulting fractures. Some apparently stay on Prolia long term. Some go on to Reclast. Some go on Tymlo, Forteo or Evenity. I did not intend to make you worry about what you are doing!

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I understand and I appreciate your concern. I have turned to Reclast to prevent abrupt loss of bone density and resulting fractures. I made sure that I started the Reclast right when I was due to get my second Prolia injection. It is my hope that I can prevent any negative effects from stopping the Prolia with only one year of Reclast. I hope the very sore arm muscle pain I have with Reclast will fade with time.

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1 reply
windyshores | @windyshores | Jul 25, 2022
In reply to @hlp123 "I understand and I appreciate your concern. I have turned to Reclast to prevent abrupt loss..." + (show)
@hlp123

I understand and I appreciate your concern. I have turned to Reclast to prevent abrupt loss of bone density and resulting fractures. I made sure that I started the Reclast right when I was due to get my second Prolia injection. It is my hope that I can prevent any negative effects from stopping the Prolia with only one year of Reclast. I hope the very sore arm muscle pain I have with Reclast will fade with time.

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Sounds good and good luck!

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hlp123 | @hlp123 | Jul 25, 2022

Thank you !
Good Luck to you also, with this journey we are on to do the best we can for our bones. I hope you will continue to share your experience ! I am anxious to learn all that I can !

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joan26 | @joan26 | Jul 26, 2022
In reply to @ny2ganana "All I will say is that if your doctor recommends a medication, please go home and..." + (show)
@ny2ganana

All I will say is that if your doctor recommends a medication, please go home and think about it. Do your research, ask about alternatives, get a second or even a third opinion. The osteoporosis did not happen overnight and it will not be healed overnight either. I have one doctors opinion but have appts for 2 others, one being someone that may take more alternative approaches and the other an expert in the field. Don’t make a hasty decision that you may not be happy with later. Don’t let anyone scare you about it. Anyone can break a bone at anytime under any circumstances, so don’t let fear of that possibility be your motivation to make a rash decision.

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I wish I had done all of this before getting involved with Prolia!

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