I've had neuopathy pain in my feet and toes for ove 10 years !
I've been to many doctors who thought they knew all about neuopathy pain, but they didn't !
I've taken all the gabipitan drugs that did nothing to ease my pain !
My balance is way off and I'm afraid that I'm going to be in a wheelchair sooon !
I've had neuopathy pain in my feet and toes for ove 10 years !
I've been to many doctors who thought they knew all about neuopathy pain, but they didn't !
I've taken all the gabipitan drugs that did nothing to ease my pain !
My balance is way off and I'm afraid that I'm going to be in a wheelchair sooon !
Have you tried any complementary therapies? The Foundation for Peripheral Neuropathy has a lot of information on things to try that others have found helpful.
I have SFN (and I guess fibro - need to see if that diagnosis still fits now that I have SFN diagnosis). I tried some of the copper infused products, and they actually work for me! I don’t know why - maybe it’s the combination of the light, thin fabric plus the warmth they generate? When I give up on being fashionable, I wear copper “ leggings” that come from shin to thigh. They really help my knee pain when I have to be on my feet. The elastic does bother me after a while. I buy these, and ankle supports, on Amazon. I decided to say “ what the heck” and engage in my favorite previous pastime the other day - a walk in my beautiful neighborhood. I was able to walk and enjoy it ( except for the pain in my sacral area and hips). I will say that I’ve been paying the price since then. Couldn’t walk up the steps at church yesterday - had to take the elevator. And I used to scurry up those steps! The point of this - the copper garments give me relief while I’m active but don’t prevent pain after.
I have had chemo induced neuropathy in both feet, finger tips, and left leg from the knee down since 2020 when I was diagnosed with ovarian cancer. Nobody at the hospital prepared me for neuropathy following my first chemo so I had nothing for the pain. The pain was so bad it was the closest I came to wanting to kill myself. I was prescribed Lyrica (can't do gabapentin) which helped tremendously during and after chemo. Off the Lyrica for nearly 2 years and now intermittent shooting pain is starting up again. Tried Lyrica recently but had to go off it because of dizziness. In addition to neuropathy, I have constant back pain (5 surgeries), have hypothyroidism, and very recently was diagnosed as pre-diabetic. My PT gave me the name of a neurologist for the neuropathy who I just recently saw. She ordered a battery of blood tests and to my surprise I learned I'm pre-diabetic. Thankfully my A1C is at the very bottom of the range. After talking with my older brother, I'm treating that through diet and exercise. My B12 came back normal, but was low. The neurologist told me B12 can have an affect on neuropathy as well as other things. I will start taking a B12 vitamin starting tomorrow. I'm considering replacing my PCP who I've been seeing for many years. My mother died from diabetes and my older brother is pre-diabetic. All of this is in my family history but she never once did an A1C blood test and I'm soon to be 76. As for the neuropathy, I've learned chemo, diabetes, and thyroid disease are all causes. I feel like I only need my PCP these days to write scripts or verify or deny what I already know. Sometimes I feel like I'm the doctor!
@user_ch98d0b5c - Well, I fit that condition...idiopathic peripheral neuropathy. Unlike John, mine comes with a ton of pain. The possible cause may be previous injuries like falling off horses and down mountains. I am happy to offer what does and does not work for me to provide some relief. Just let me know and I can send you a private message or post for all.
My large peripheral nerves were damaged by vasculitis. I have pain and the tingling and the hot and cold and everything else that happens when you have peripheral neuropathy. Nothing really helps except I sometimes use Aspercreme. My neurologist has also recommended that I use ALA alpha lipoic acid. So I started taking that about six weeks ago. I haven’t seen too much relief from that yet but she wants me to double up and so I’m gonna start that right now. It’s tough when one disease causes another disease and you can’t do anything about it. But I’m learning to live with it and it’s just plain annoying. My arms tingle I feel like I’ve got ants and bugs crawling up and down my arms and legs all the time so I’m constantly sweating at myself after while it becomes funny. I don’t know what else to say. I wish you the best and please know that you are not alone in this.
Hi Donald, We removed your personal email address from your message above to @artscaping. We recommend not posting personal contact information in the public forum. You can use the secure private message function to exchange contact information with another member.
Connect
Connect
Like
Helpful
Hug
Welcome @bvw, There is another discussion that you might find helpful.
-- Socks - What helps with Neuropathy?: https://connect.mayoclinic.org/discussion/socks-1/
@momalin has mentioned that neuropathy socks helped them and may have more information to share with you.
Have you been diagnosed with neuropathy or do you just have the symptoms?
-
Like -
Helpful -
Hug
1 ReactionI was diagnosed with predominantly axonal neuropathy after a nerve conductivity test.
-
Like -
Helpful -
Hug
1 ReactionI've had neuopathy pain in my feet and toes for ove 10 years !
I've been to many doctors who thought they knew all about neuopathy pain, but they didn't !
I've taken all the gabipitan drugs that did nothing to ease my pain !
My balance is way off and I'm afraid that I'm going to be in a wheelchair sooon !
Have you tried any complementary therapies? The Foundation for Peripheral Neuropathy has a lot of information on things to try that others have found helpful.
-- Complementary Therapies: https://www.foundationforpn.org/living-well/complementary-therapies/
-
Like -
Helpful -
Hug
1 ReactionI have SFN (and I guess fibro - need to see if that diagnosis still fits now that I have SFN diagnosis). I tried some of the copper infused products, and they actually work for me! I don’t know why - maybe it’s the combination of the light, thin fabric plus the warmth they generate? When I give up on being fashionable, I wear copper “ leggings” that come from shin to thigh. They really help my knee pain when I have to be on my feet. The elastic does bother me after a while. I buy these, and ankle supports, on Amazon. I decided to say “ what the heck” and engage in my favorite previous pastime the other day - a walk in my beautiful neighborhood. I was able to walk and enjoy it ( except for the pain in my sacral area and hips). I will say that I’ve been paying the price since then. Couldn’t walk up the steps at church yesterday - had to take the elevator. And I used to scurry up those steps! The point of this - the copper garments give me relief while I’m active but don’t prevent pain after.
I have had chemo induced neuropathy in both feet, finger tips, and left leg from the knee down since 2020 when I was diagnosed with ovarian cancer. Nobody at the hospital prepared me for neuropathy following my first chemo so I had nothing for the pain. The pain was so bad it was the closest I came to wanting to kill myself. I was prescribed Lyrica (can't do gabapentin) which helped tremendously during and after chemo. Off the Lyrica for nearly 2 years and now intermittent shooting pain is starting up again. Tried Lyrica recently but had to go off it because of dizziness. In addition to neuropathy, I have constant back pain (5 surgeries), have hypothyroidism, and very recently was diagnosed as pre-diabetic. My PT gave me the name of a neurologist for the neuropathy who I just recently saw. She ordered a battery of blood tests and to my surprise I learned I'm pre-diabetic. Thankfully my A1C is at the very bottom of the range. After talking with my older brother, I'm treating that through diet and exercise. My B12 came back normal, but was low. The neurologist told me B12 can have an affect on neuropathy as well as other things. I will start taking a B12 vitamin starting tomorrow. I'm considering replacing my PCP who I've been seeing for many years. My mother died from diabetes and my older brother is pre-diabetic. All of this is in my family history but she never once did an A1C blood test and I'm soon to be 76. As for the neuropathy, I've learned chemo, diabetes, and thyroid disease are all causes. I feel like I only need my PCP these days to write scripts or verify or deny what I already know. Sometimes I feel like I'm the doctor!
-
Like -
Helpful -
Hug
1 ReactionI just read your post about neuropathy pain and I also would like you to send me information on what helps !
Thank You,
Donald Goss
I feel so alone. Thank You for your comment.
-
Like -
Helpful -
Hug
2 ReactionsHi Donald, We removed your personal email address from your message above to @artscaping. We recommend not posting personal contact information in the public forum. You can use the secure private message function to exchange contact information with another member.
You are welcome. You’re not alone!
-
Like -
Helpful -
Hug
3 Reactions