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Hello @nullz, Thank you for sharing your experience. I've also been diagnosed with idiopathic small fiber peripheral neuropathy but only have the numbness. I've been in the prediabetes category most of my adult life and it's only been the past few years after doing a lot of research that I've made lifestyle changes to try and help. I've also wondered about different causes and connections and started looking into the metabolic syndrome since I fall into that condition also.
Here are a couple of references that discuss it if you would like to learn more...
-- The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
-- Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/
It's really good to hear you've found an answer for your SFN. Hoping others read your story and benefit by your experience. Do you mind sharing what brought you to Connect, what you were searching for?
Replies to "Hello @nullz, Thank you for sharing your experience. I've also been diagnosed with idiopathic small fiber..."
Thank you again John. Your case is the closest to mine that I have found on this site.
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Thanks for the note, John; much appreciated. I don't personally fit enough of the metabolic syndrome criteria to match the diagnosis, but it is interesting that there is increasing evidence that glucose control isn't the whole story w.r.t. otherwise idiopathic peripheral neuropathy.
Although a diet change has improved my symptoms greatly, I'm not convinced that there isn't (also?) something else going on, as my glucose levels barely qualify as prediabetic, and I have a few other other symptoms (e.g., recent large decrease in BP) that are 'atypical'. So articles like the one you linked to make for interesting reading.
I've lurked on Connect for a while, finding it helpful to read of others' experiences, both in terms of learning new things (e.g. your links) and, frankly, finding a bit of hope; the psychological toll of SFN can be rough, and a bit of hope went a very long way when my symptoms were at their worst. I joined and posted today because I saw a message claiming that SFN was always permanent because SF nerves don't regrow (which is, as you know, is incorrect) and wanted to be balance that claim with a story of some success.