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Post Transplant - Core numbness and weakness

Transplants | Last Active: Oct 5, 2023 | Replies (37)

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@ajdo129

I wish I had been forewarned about the tremors from tacrolimus. I was told there might be shakiness which I imaged as mild compared to the Parkinson's like tremors where I shake so bad at times I lose my balance.
I am seeing a physical therapist twice a week to work on balance snd strength. Also I am changing diet to eliminate my 1 cup of coffee a day and increase magnesium rich foods.

Everyone I know says I look great and how courageous I was to go through so much. Inside I don't feel great; I don't recognize myself in the mirror and; the emotional and mental aspects of my transplant journey have yet to catch up with my physical accomplishment.
It is awkward to to be so very greatful for a new life and ready to get back to teaching, dancing and everyday chores while facing debilitating and unpredictable symptoms that slog down those goals. I have accepted that the tremors may last a whole year and recovery is alot slower than implied.

My 4 month check up is around the corner and I am looking forward to decreasing some meds and finding out when I can add abdominal exercise to my aqua aerobics. When I can control my tremor induced loss of balance I will be back to the dance floor again.

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I am going on 4 months post transplant for my liver. I just stumbled across this list and I am reading this sitting at my dining table crying. While I’m surrounded by love ones who constantly encourage me, it is somehow a comforting feeling to hear your stories and know I am not alone. You all are writing as if you have access to my brain. THANK YOU!