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Pulmonary Sarcoidosis: How are you dealing with it?
Lung Health | Last Active: Sep 23, 2023 | Replies (126)Comment receiving replies
yes and now I'm anemic maybe due to an illiectomy over 50 years ago. Have had lung probs. too and also now I have high potassium so on a low potassium diet. Have lost weight and have had a prince metal heart attack over 40 years ago. Now doctor is cking on many things. Also have stage 3b kidney disease.
Sarcoidosis was discovered over 40 years ago. Only thing I know is that it has affected my lungs and have had some bronchial infections at least twice before. I am wondering how much of all my problems are due to the sarcoidosis.
Replies to "yes and now I'm anemic maybe due to an illiectomy over 50 years ago. Have had..."
@sds, you're so right. Looking at this article from Mayo Clinic underlines that sarcoidosis can affect almost every system in our body, which can make it challenging to diagnose.
- About Sarcoidosis https://www.mayoclinic.org/diseases-conditions/sarcoidosis/symptoms-causes/syc-20350358
You mention a couple of conditions for which there are specific groups in on Mayo Connect that you might be interested in following:
- COPD https://connect.mayoclinic.org/group/copd-chronic-obstructive-pulmonary-disease/
- Kidney Disease https://connect.mayoclinic.org/group/kidney-conditions/
- MAC & Bronchiectasis https://connect.mayoclinic.org/group/mac-bronchiectasis/
Have you discussed the findings of the CT scan with your doctor? Did you correct the error about the dye contrast not being used? What next steps did you discuss with your doctor?
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I think it was after my prince metal heart attack so that would have been in about 1990 or 91. The dr. just ordered a CT scan of my lungs and I just got the report today. It says "1. Findings of COPD. There is centrilobular emphysema and large AP diameter. In addition there are patchy areas of air trapping seen on the expiration images. 2. There is prominent scarring in both lung apices and mild scarring peripherally elsewhere in the lungs. These findings are only mildly worsened compared with 2015. There is mild associated bronchiectasis in the lung apices" It then also said there is no mediatinal lymphadenopathy. also said there are no difinite new nodules, infiltrates or effusions. Also said that a dye was administered - but I did NOT receive an IV dye.