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Hodgkin Lymphoma was stable, now new activity
Blood Cancers & Disorders | Last Active: Nov 18, 2023 | Replies (22)Comment receiving replies
@hnipper1, I was reviewing your posts in the Nodular sclerosing Hodgkin lymphoma (NSHL) discussion here: https://connect.mayoclinic.org/comment/675226/
I'm tagging some of the members you've connected with in the past, namely @fishingfever @jenniferswayze76 @niki101 @melbishop @mepowers @grandpabob, who may be able to share about their experiences with spread to the lymph nodes.
Hnipper, it must be a blow to hear that the cancer is on the move after being stable for an extended period. What treatment has your team suggested? How are doing?
Replies to "@hnipper1, I was reviewing your posts in the Nodular sclerosing Hodgkin lymphoma (NSHL) discussion here: https://connect.mayoclinic.org/comment/675226/..."
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@solleenyoung I am doing well for an 82 year old, and feel no different than I did a year ago, but my team here in Omaha has suggested having another set of eyes on the PET scans. My Zoom with the second heme-onc physician is 8/3. First look is that the newly active node is hard to get to. Don't know what the options are, but will learn over the next few weeks. I am remaining calm but obviously concerned.