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Hodgkin Lymphoma was stable, now new activity
Blood Cancers & Disorders | Last Active: Dec 3 9:33am | Replies (26)Comment receiving replies
@hnipper1, I was reviewing your posts in the Nodular sclerosing Hodgkin lymphoma (NSHL) discussion here: https://connect.mayoclinic.org/comment/675226/
I'm tagging some of the members you've connected with in the past, namely @fishingfever @jenniferswayze76 @niki101 @melbishop @mepowers @grandpabob, who may be able to share about their experiences with spread to the lymph nodes.
Hnipper, it must be a blow to hear that the cancer is on the move after being stable for an extended period. What treatment has your team suggested? How are doing?
Replies to "@hnipper1, I was reviewing your posts in the Nodular sclerosing Hodgkin lymphoma (NSHL) discussion here: https://connect.mayoclinic.org/comment/675226/..."
Hi, all,
I was reading submissions to the group today and realized that it has been a while since I commented about my NSHL - the new node that showed up. I am happy to say that since that time, my oncologist here at Creighton in consultation with those at Mayo has added bendamustine to my nivolumab routine. The result over the last two years is that the lymphoma seems stable, and in fact shrinking a bit each time I get a PET (now CAT) scan! Happy to say that stable is good! Writing this over Thanksgiving weekend seems appropriate and going into the Christmas Season, I consider that I have been given a wonderful gift of additional years of survival. I am very grateful, and try to pass that sense of gratitude to others around me.
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@solleenyoung I am doing well for an 82 year old, and feel no different than I did a year ago, but my team here in Omaha has suggested having another set of eyes on the PET scans. My Zoom with the second heme-onc physician is 8/3. First look is that the newly active node is hard to get to. Don't know what the options are, but will learn over the next few weeks. I am remaining calm but obviously concerned.