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Hello @dukeduke1, @ashley5886 and @sally3240, Welcome to Connect. It must be extremely difficult dealing with all of the different symptoms you each have. I'm happy to see that the three of you connected in this discussion. I just have numbness and some minor tingling with my small fiber peripheral neuropathy and can't imagine how much worse it is to have the internal vibrations and other symptoms along with my diagnosis.
You might find the following somewhat related discussions helpful:
-- Has anyone experienced internal vibrations?: https://connect.mayoclinic.org/discussion/internal-viberations/ -- Lyme Disease and its Co-Infections, Morgellons Disease and Parasites: https://connect.mayoclinic.org/discussion/morgellons-and-other-parasites/
Several members mentioned the feeling of bugs under skin feeling in other discussions and may have some thoughts or suggestions:
-- @revfluegel - https://connect.mayoclinic.org/comment/636215/
-- @memomsloan - https://connect.mayoclinic.org/comment/243835/
One thing that helped my on my health journey with neuropathy was to learn as much as I can about my conditions and symptoms. I found Google Scholar (https://scholar.google.com/) quite helpful for finding the latest medical research articles.
Have you done any research on your conditions and possible treatments?
Replies to "Hello @dukeduke1, @ashley5886 and @sally3240, Welcome to Connect. It must be extremely difficult dealing with all..."
Well John, I wonder if you have any ideas for me to try. I’ve responded here few times about my internal Vibrations. I’ve had them daily since Sept of 2020. Starting in my left foot and moving up to my knee then bam the other leg all way up to my upper waist area in just 2 months. I’ve had them faithfully for 3 yrs 4months now. Neurologist or my Neurosurgeon can’t figure it out. They say it’s spinal or a brain issue. I’ve had numerous MRI’s and CT scans n only thing they see is a cyst in my mid upper spine that could be preventing fluid from flowing through normally. It’s like a motor in my body 24/7. I wake up to it and I go to sleep with it. I try to figure ways to explain vibration, to a bubbling pot at my feet and I can feel the boiling like water rush through my body. But I don’t feel that water sorry, it’s just the motion I’m feeling from it. I’m sitting on this and can’t get cozy and I’m not able to even enjoy the vibration. This is miserable. My Dr just did another complete BW on me and I’m good cept for my Thyroid is still not balanced. So lowering dosage again. Got so low I lost a lot of hair. I lost well over 100 pds. My body feels like I’m racing but not getting anywhere. I’ve cried so many times on my family. Had brain scans. What us this vibration from? Why can’t Drs around here or an hour away like U of M hosp. Figure out what’s causing this ? I know I’m not the only one, I see many on here complaining of the same problem. I wasn’t doing anything when all this started. I was going to a Dr appt and started feeling it in my foot. I have had a spinal cord Stimulator before. I had it for RSD reasons put in 2007 and removed in May 21’. To me it’s the same vibration as having the stimulator still in me turned on full blast. Now if you or anyone you know has one of these then you know the same vibrations I’m talking about. My husband I know is tired of me whining about this, after all it’s been over 3 years now n nothing has been done to stop it. I just need some little hope that someone else having this and was cured or going through being on the right track. I need a little hope. I can’t deal with this any longer. I can’t do this anymore. Who is there can help get rid of these ? It’s same feeling from bottom of my feet to my upper waist. It’s a miserable life. Please send some encouragement my way. Thanks and God bless our Country!
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I can’t get into google.