← Return to Arteriovenous Malformation (AVM) Survivors and side effects

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@colleenyoung

Hi @intrepiddoc, welcome to Mayo Clinic Connect, an online community connecting patients, allowing people to share the knowledge and expertise of experience living with a condition, and to give and get support.

Through a Google search, I found this recently published research by my Mayo Clinic:
- Evaluation of the Safety of Calcitonin Gene-Related Peptide Antagonists for Migraine Treatment Among Adults With Raynaud Phenomenon https://pubmed.ncbi.nlm.nih.gov/33871613/ (April 2021)

Here is information about AVM care at Mayo Clinic https://www.mayoclinic.org/diseases-conditions/arteriovenous-malformation/care-at-mayo-clinic/mac-20350547

Fellow member @msb18 discussed use of CGRP antagonists in this related discussion:
- Migraine - Aimovig and Cardiology or Pulmonology https://connect.mayoclinic.org/discussion/migraine-aimovig-and-cardiology-or-pulmonology/

I hope this helps get you started as you search for treatment options. How long have you been living with AVM?

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Replies to "Hi @intrepiddoc, welcome to Mayo Clinic Connect, an online community connecting patients, allowing people to share..."

Thank you for your quick response. I will read these.

3 years. Too large >5 cm, and areas too important to consider surgery. Treatment at Emory which was spectacular. Had consultations at Barrow, Stanford, and USC prior to deciding on Emory. 2 courses of radiation and now over 90% gone but just per MRI/MRA. Pending angio in a few months.