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Mast Cell Activation Syndrome: What treatments help you?

Blood Cancers & Disorders | Last Active: Mar 18 7:20pm | Replies (30)
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@hsminc

I know that the Mayo Clinic in Rochester has a mast cell program. They may have the largest program.
Google "The Mast Cell Disease Society." They have a list of centers. Arizona is not included. The website is tmsforacure.org
In California, Stanford is listed.
Good luck. We have a friend with this condition. She goes to Rochester Mayo.

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Replies to "I know that the Mayo Clinic in Rochester has a mast cell program. They may have..."
sommerreign | @sommerreign | Sep 15, 2022

An you ask your friend what treatment Mayo had her in that helped? You can’t eat food, go into hotels or stores because the disinfectant sprays trigger the facial flushing and shortness of breath.

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