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Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Blood Cancers & Disorders | Last Active: Nov 15 7:18pm | Replies (329)
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@sally2022

Update - as of June I am in remission. I have read up a lot on my type and it appears it will be a course of constant monitoring and tests and possible relapses and then more treatments but my life will be extended. Hope you are doing well. @sally2022

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Replies to "Update - as of June I am in remission. I have read up a lot on..."
stankent | @stanleykent | Jul 24, 2022

Sally, It is great to hear you are in remission. Always nice to hear the positives!
I wonder what determines the quantity of Rituximab infusions. From this forum, I have heard weekly regiments from 4 to 8 and have heard of some "maintenance" infusions added through the year. I suppose everyone responds differently, but is interesting. I think I'm getting closer to this treatment.
As mentioned I was diagnosed with chest fluid (Pleural effusion) and removal ( thoracentesis ) in April and in now again in July. At the moment they are uncertain of the cause for the fluid, but leaning toward SMZL as the cause.
It's complicated because of my lung cancer surgeries in 2019 and 2021, my SMZL since 2019, or fluid is caused by something else. . ......another struggle to deal with.....

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