From my bloodwork in May, I can almost tell the progression is ramping up. All the new symptoms appearing tells me I’m heading for trouble. From all the damage done to my body from the bad guys, it’s something that my Oncologist said to me, as my appointment was ending, it sounded ominous. I don’t think they can use the normal treatment for cancer patients and she didn’t know what they could use, since most drugs used are very hard on the heart and my heart is barely hanging in. All I know is that any treatment she uses will kill me. Great huh! Take care of yourself and watch how the various numbers in your bloodwork are headed, up or down. Up is definitely bad. Good luck.

Hi Sally, I also have SMZL diagnosed in May. Just hoping to connect with others to share info and support. Am currently watch & wait although my immunoglobulins getting lower. How have you been doing? Feel free to AMA, have done a ton of research and had 3 opinions at this point! Thank you, Lila