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This and That and Talk - My Transplant

Transplants | Last Active: Aug 14 9:57pm | Replies (1677)
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@hello1234

Hi @tasher3433
Thank you so much for the quick response.... You must be an excellent caregiver! 😊 I am very happy to hear the donor had a clean 2 year check up! That's awesome! Regarding the recepient getting BK virus with a reduction of immune suppression, I had a similar situation. I came down with CMV virus and they reduced my immune suppression (and meds continue to be reduced too). I think it's a common occurrence within the first two years. My immune suppression meds were reduced to 500mg Cellcept twice a day and 6mg Envarsus XR once a day. Is that the approximate dosage that she/he is taking too? (I am also in discussion about my upcoming 2 year protocol biopsy). Were there any symptoms of the BK or was it just found in the regular blood work? How is she/he feeling now?

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Replies to "Hi @tasher3433 Thank you so much for the quick response.... You must be an excellent caregiver!..."
tasher3433 | @tasher3433 | Jul 21, 2022

Hi! The myfortic ( same effects but different from cellcept is the one reduced to 4x 180 mg/ day.
Re the 2 year protocol biopsy, very recent blood tests show no sign of infection so that decision is optional and will be discussed w local nephrologist ( Las Vegas).
The symptoms of BK were negligible, but showed up in the bloodwork. I assume you, too, see a vampire monthly?
The Vegas heat is very wearing in combination with AC, but spirits are high! Best Wishes!

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