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Want to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: Jul 1, 2023 | Replies (401)Comment receiving replies
What’s your classification IgA, IgG or I’m Kappa light chain IgM MGUS. My older brother James died from MM because he was exposed to Agent Orange in Vietnam. At first my Oncologist thought my bloodwork was showing I was headed to MM but my MGUS was caused by me having Precancerous Cells that are slowly progressing to either Non Hodgkin’s Lymphoma or possibly Waldenstrom Macroglobulemia. My last blood test shows it’s progressing fairly quickly. I’m testing every 3 months and from September to December 2021 the bad guys jumped 25%. Between December to May 2022, they jumped 100%, not good news. But the mutated B cells are still getting worse, not good.
How’s your MGUS classified and is it progressing any? Good luck, Becky1024.
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Your information is waaayyyy over my head. I was dx in 2000 and so much has changed. I remember they said something about light chains and that's about it. I have had thyroid cancer since then but I was warned that the total body irradation I received as part of the experimental protocol would increase my risk of seconday cancers (also have skin cancer, but doesn't everyone from my 50s generation?)
I hate to hear that your number are increasing. It must be terrifying for you. If you need a friend to vent to, I'm both a survivor and a therapist. Reply to me and we'll switch contact information. It was essential and soooo helpful for me to have someone who truly understood when I was going through this. Not just the cancer part, but the family/friends part, the job, the finances, etc. Sending you love and positive energy,
Karen