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DiscussionWant to talk about Multiple Myeloma: Anyone else?
Blood Cancers & Disorders | Last Active: Nov 10 6:24pm | Replies (414)Comment receiving replies
Replies to "I am helping my sister who is getting her 3rd treatment today for multiple myeloma. The..."
What is the exact cause of her pain? Fractures are the most likely reason. They do radiation treatments which will quickly relieve that pain. Also, Fentanyl patches (work for 3 days) are a god-send because the four hour times between meds is impossible. How do you wake up and go to the bathroom in the middle of the night if you can't get out of bed because of pain, right?
The stupid "opiod crisis" has caused doctors to become incredibly cruel, in my opinion. Have your sister make a journal of her pain....by the hour, describing it using the 1-10 scale or whatever describes her pain level best....and don't try to be a hero. Let those uncompassionate (bad words) SEE what she is going through! Go with her and talk to a pharmacist....and not the costco or walmart kind. It was my pharmacist who told me about Fentanyl, which saved my life (no exaggeration). Also, Fentanyl produces a "lollipop" that you can take a few sucks of for breakthrough pain. Tastes good, too! Might be hard to get, but you can help her FIGHT for her rights, since she is probably too overwhelmed to do so for herself. Pain clinics have not been helpful to me because of the opiod crisis mentality. I have 17 compression fractures and live with pain everyday. It is hard not to feel victimized by the callous treatment pain patients receive. I also use a heck of a lot of CBD. I grow it legally, then use the recipe from the Canadian government that they use to treat PTSD vets. It's online.
Thank heavens a decent doctor will support her use of that wonderful herb. Not only does it help take the edge off but it really helps with sleep, AND it is a great anti-inflammatory. When you do it yourself, it is CHEAP.
I have a great care-giver/friend who has kept me from giving up from pain and that horrible helpless feeling one gets from being treated callously for very, very, real pain. Also find a really good teacher of self-hypnosis. I didn't think it would help, but it really did, especially during treatments. Acupuncture as well. I even ended up taking dessicated worms in capsules (chinese medicine) I was so desperate. It didn't work, but then the practioner and I didn't know I was actively dying at the time. If you think I can offer her any support at all, please let me know by replying to this message. I can't stand thinking of what she is going through, because I've traveled a similar path and I know how scary and hard it is. Please tell her not to give up.. ... Did you know that patients who advocate for themselves have a much much higher rate of survival? Of ANY disease? FIGHT. Don't let those bastards get you down. They just fear losing their licenses when their overprescribing in the first place contributed to this problem.
Sending good universal energy to you and your sister and family. Hugs, Karen (now 68 and 21 years in total clinical remission with no cancer medications.)