← Return to Treating Osteoporosis: What works for you?

Discussion

Treating Osteoporosis: What works for you?

Osteoporosis & Bone Health | Last Active: Nov 3, 2023 | Replies (1084)

Comment receiving replies
@joan26

Where to begin! Either from being on Prolia or going off briefly ( when bone specialist said I needed a "drug vacation" ) leading to several broken vertebrae pretty much ending my active, pain free life, and also leaving me with skin eruptions, macular degeneration of retina threatening blindness (which one retina specialist said because I was on Prolia and another retina specialist said was because I had osteoporosis, so go figure!) The only blessing is my advanced age so nature will put me out of this misery fairly soon. (That said, constant pain and immobility was definitely NOT my retirement plan!) How do I deal with this? By having enough money to hire help to do chores I used to manage easily, take taxi cabs because I can no longer drive (although not having a car does save money), by crying a lot, and by sharing my experience with others!

Jump to this post


Replies to "Where to begin! Either from being on Prolia or going off briefly ( when bone specialist..."

@joan26 I can relate, with 7 spinal fractures. People don't realize how much pain and disability can result, as well as a loss of independence. I wonder if you have done or are doing any bone-building drugs like Tymlos, Forteo or Evenity.

I cannot do much but my daughter is visiting and noticing I am a little stronger than last year right after 4 of the fractures. Meaning, I can lift a little more. (I don't mention the pain.) I am on Tymlos.

I am lucky- I can drive. In fact the support of my car seat actually helps. Loss of driving would be tough since walking while carrying is hard.

I am so sorry to hear of your ordeal dealing with this horrible disease. It's unfortunate that better treatments with less horrific side effects aren't available for us. Thank you for your response and may your Higher Power guide and protect you.