CRPS - anyone suffering with complex regional pain syndrome

@drg24242 So, Gabapentin it is, and you have room to increase your dose if you find you need more relief.

Norco is a hydrocodone/Tylenol mix, still an opiate, but I'm happy to hear your pain doc has a plan to work slowly on your reduction. Good news!

Bring on the 28th!!

Thank's Rachel. Now it's on to neuroligest 7/21. Take care, Darryl

I saw my new pcp today for first time. She asked me how long I have had a pronounced heart murmur. I informed he that in my 68 years I have never been told that I have one. From what I have read on Connect, with all the stress my body has been under with crpd pain, is it true that it can start to effect internal organs or am I just being paranoid Now having to get echo. Just one more thing to add to the list. I was hoping the list may start getting shorter but I quess not. Thanks for listning. I feel better just getting it out. Darryl

Hello @drg24242

I was intrigued by your post as I also have a heart murmur. Whether or not this could be caused by stress from CRPD pain is not something that I could answer.

I would advise you to wait until you have the Echocardiogram to see which valve is causing the murmur and whether or not there is leakage/regurgitation from that valve. Please know that there are heart murmurs that are considered "innocent" and don't cause problems with heart function. Here is a link to some information from the Mayo Clinic website titled, "Heart Murmurs," https://www.mayoclinic.org/diseases-conditions/heart-murmurs/symptoms-causes/syc-20373171.
Do you have an appointment scheduled for the Echo?

I saw my new pcp today for first time. She asked me how long I have had a pronounced heart murmur. I informed he that in my 68 years I have never been told that I have one. From what I have read on Connect, with all the stress my body has been under with crpd pain, is it true that it can start to effect internal organs or am I just being paranoid Now having to get echo. Just one more thing to add to the list. I was hoping the list may start getting shorter but I quess not. Thanks for listning. I feel better just getting it out. Darryl

Hi, My name is Doreen. I have had CRPS type 2 since 3_2006. CRPS can go to any body part it feels like. This is a fact. Most Cardio doctors do not know what CRPS is let alone know what it may do to a person. I am in a Face book group called Positivity with CRPS/RSD.ORG. Susan is the administrator. She will gladly answer any question you might have. Everyone in the group helps each other. No nasty posts ever get posted. Please join. We meet every evening. We go thru many books on how to live with this. We laugh a lot too. All the meeting are available in the group files. This group is recognized by CRPS.Org

Thank you will look into it chronic pain is so hard to live with 24-7 have had it since 1989 and just gets worse I try to stay active live alone age 77 and sure could use some good advice Barb Northen Mn

Hello All, I was just diagnosed with CRPS after my last surgical procedure on July 27, 2017. It's in my left foot, for the first 10 weeks I was in bed taking pain pills every 2 hours 24/7. It wasn't for the nerve pain it was to glogg my mind so I didn't have to focus on the nerve pain that was intolerable. The nerve pain was so severe I was on suicide watch by my family. Once the doctor saw me he diagnosed me right away with CRPS, he schedule a diagnostic injection a week later and I had some relief for about 2 weeks. Since then I have had 2 injections with Botox which last for about 2 1/2 months with some relief but gives me some hope. He started me on Terazosin which is a medication to lower my blood pressure. I haven't been on it very long so i will try to keep you updated on my progress. Most recently I have been having similar nerve issues now in my right foot but not as severe but it's the beginning. I have to say what has worked the best is my faith and praying 24/7 to take the pain away. I did go to pool therapy at first it was very difficult all I did was cry but I stayed with it. Each pool session got better then I started to have land therapy which started out rough then it got better. Both therapist had gone through CRPS courses which makes it much easier because they understand what we go through. Another thing to watch out for is being pricked by needles, every time I am pricked with a signal needle my symptom will worsen for about 5-7 days. I am now seeing a Christian Pain Psychiatrist that is going to start with a program called EMDR for CRPS & Chronic Pain. I will try to keep you updated on my progress. At this point of our life we have to try anything because there is NO cure for this disease. One other thing I want to share with all of you. I have a brother that is a Nero Chiropractor that practices in Sweden for over 30 years now. I begged him to fly home which I offered to pay for his trip. After thinking about my condition and changing his work schedule he came home for 8 days to work his magic on me. At first he could not touch my left foot nor work on it so he started from my head and worked his way done day after day. By the time he left he was able to touch my foot with little resistance from me. This was a miracle that he was able to touch my foot, prior to this a fly could not land on my foot if so it was very painful. After he left to go back home he did some research to find a Nero Chiropractor near where I live. This wasn't easy because there are very few Nero Chiropractors in the USA. If you can locate one I highly recommend to go see them. The one he found for me was just starting to take course from a doctor in Canada. When and if I get up to it I plan on flying to Sweden to have my brother work on me for about 2-3 months. I cant imagine what he can do for me after 2-3 months after seeing what he did after 8 days. Again I will try yo keep you posted when this time comes, it may be he'll come back home before I can fly.
Everyone that has this disease, I will add everyone of you to my daily prayers.
Good Luck - Steve