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JAK2 Mutation - Effects and Questions

Blood Cancers & Disorders | Last Active: Jun 19 5:59am | Replies (303)

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@loribmt

Good morning! By now you and your husband are back in Rochester. I’m not sure of the timing but his transplant must be coming up soon if he’s not in the midst of it already.
This will be quite an adventure for both of you. Not an easy journey but so worth it on the other side! I’m here for hand-holding anytime. ☺️

Are you all settled into your lodging? How’s your little dog adapting to the new digs?

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Replies to "Good morning! By now you and your husband are back in Rochester. I’m not sure of..."

Good Morning Lori,
Thanks for reaching out. Today is Day+5. The chemo went well and the BMT went well with no immediate side effects. He is now experiencing fatigue and some GI issues, which is to be expected. Trying to manage that as best we can. Appetite fairly good but getting him to drink enough fluids has been challenging. He finds that the protein shakes(Ensure brand) are too sweet and cause heartburn. Time to try others. Were there brands that you preferred over others?
We are settled in pretty much. The days are long but they go so quickly. There is so much information to absorb daily and so much to keep track of. The role of caregiver is not for the faint of heart! I look forward to daily sunrise walks with our dog to get recharged for the day ahead. You never know what the day will bring. I know we are in for a rough couple of weeks coming up. We’re making the best of the “good” parts of each day and are so thankful for all of the encouragement that we have received. It’s very helpful for me to connect with you because you understand and have “been there”.