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← Return to Always run down with MGUS
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Blood Cancers & Disorders | Last Active: 2 days ago | Replies (59)
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Thank you- much appreciated. I have some bone pain, but nothing to scream about. Multiple myeloma runs on my father's side. Diagnosed with MGUS/ Lambda subtype since 5/2020, both oncologists want to see me every 3 months since 2020. Things are slowly progressing as they say and is approaching the 10% mark evidenced from BM biopsy. Hopefully someone can give me feedback as to what I can do or questions to ask my oncologists. Thank you again.
Mitten
Replies to "Thank you- much appreciated. I have some bone pain, but nothing to scream about. Multiple myeloma..."
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@mitten People can go for many years with MGUS. While the monitoring can be a chore, it is important to do it at the intervals recommended by your medical team. They will be watching closely, seeing that multiple myeloma runs on your father's side, and kudos to you for having that information to give them!
As my oncologist had told me at the beginning, he wanted to wait as long as possible before starting me on treatment, since "once you start, that will be it". I have co-morbidities and he didn't want me to be overloaded.
Ginger