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Treating Osteoporosis: What works for you?

Osteoporosis & Bone Health | Last Active: Nov 3, 2023 | Replies (1084)

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@toni7

I have a question ... What are some side effects that you or someone you know have experienced taking Prolia, Tymlos or Forteo? If you have had side effects, what are they and how did you deal with them? I'm more comfortable knowing firsthand what people (rather than clinical studies) deal with taking these drugs.
Thank you for your response!

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Replies to "I have a question ... What are some side effects that you or someone you know..."

Hi @toni7, There are a few discussions on the side effects you might find helpful:

-- Side Effects of Prolia: https://connect.mayoclinic.org/discussion/side-effects-of-prolia/
-- Tymlos side effects: https://connect.mayoclinic.org/discussion/tymlos-side-effects/
-- Forteo vs. Tymlos: https://connect.mayoclinic.org/discussion/forteo-vs-tymlos-1/

I’d like to put in a good word for Forteo, as I’m just now finishing up my 2nd year with zero side effects. Never had a single problem with it beyond overcoming my early squeamishness about injecting myself. Have my DEXA next week and hoping for good things!

Where to begin! Either from being on Prolia or going off briefly ( when bone specialist said I needed a "drug vacation" ) leading to several broken vertebrae pretty much ending my active, pain free life, and also leaving me with skin eruptions, macular degeneration of retina threatening blindness (which one retina specialist said because I was on Prolia and another retina specialist said was because I had osteoporosis, so go figure!) The only blessing is my advanced age so nature will put me out of this misery fairly soon. (That said, constant pain and immobility was definitely NOT my retirement plan!) How do I deal with this? By having enough money to hire help to do chores I used to manage easily, take taxi cabs because I can no longer drive (although not having a car does save money), by crying a lot, and by sharing my experience with others!

My one and only Prolia injection left me with an unusual side effect...within days I no longer was able to taste anything properly. I didn't lose my sense of taste; there was just a strange overlying taste. Coffee was especially foul. I refused to take any more Prolia and went back to Actonal. Belatedly reading this site, I saw so many scary side effects. In hundreds of posts, I saw only two about taste, one person described it as "burnt mouth".

I had severe pain in my thigh after taking prolia for three years. It felt like I was trying to walk on a broken leg. It also caused bone loss in my jawbone, so I’m unable to have an implant.