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This and That and Talk - My Transplant

Transplants | Last Active: Jun 7 8:31am | Replies (1672)

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@rosemarya

Hi, @jeff79922. I know what you mean about handwriting! I have to include threading a needle to the list. It was really aggravating at first, and I remember being told by one of my doctors that I would just have to get used to it. That made me a bit angry at first, however I soon cooled down and accepted it. The protection for my transplanted liver and kidney along with my good reports now at 13 years, made every annoying tremor morning worth it.
I still get tremors occasionally. They are always in the morning after my 8:00 AM Tacrolimus and Cellcept. Then, as if someone flipped a switch they disappear between 9:15-9:30.
Enjoy your day.

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Replies to "Hi, @jeff79922. I know what you mean about handwriting! I have to include threading a needle..."

Hi @rosemarya 😊
Yes, that is my experience with shaking hands (tremors) too. After a very successful 13 years post transplant (Yeah!!!!) and all of those years of adjusting your medications, I am curious what your current dosages are for maintenance each day? I am two years post transplant so still involved with "tweaking" and adjusting. I know that each person has their own medication cocktail tailored to them, but I am curious after 13 years what your daily med regimen looks like?

I’d forgotten about the Tacrolimus tremors! I’m off tacro now, but during my 2.5 years with it I had the quirky tremors. It was a little difficult initially to feel comfortable with them since I was a career dental assistant, often assisting with oral surgery where my hands had to be incredibly steady. (Now retired)
I guess I just accepted the tremors as part of my life because I was so joyful to even have a life! A little shaking didn’t feel like that big of a deal. In fact, I did some of my coolest artwork during that period. My friends noticed the change and enjoyed my whimsical drawings. LOL. Little did they know, the squiggles and extra dots or designs on the paper were not intentional! 😂