Covid has accelerated my RA for almost two years (Covid pneumonia November 2020) with no signs of slowing or stopping. Thankfully I have an excellent and caring RA doctor, he works with me to try to manage the many issues that I’m experiencing Post
Covid that are in his area of expertise. I take Plaquenil twice daily, Methotrexate weekly and a monthly Infusion. (He started me on Symponi, which didn’t seem to help, then Orencia which I had a rare allergic reaction to and next week I will begin Actemra monthly. (fingers crossed it will be the one that works!) Besides my RA doctor, I have a terrific PCP, Endocrinologist, Neurologist Cardiogolist and Opthalmologist. It may sound like to many “cooks in the kitchen” but we have to surround ourselves with good Doctors that recognize that PCS is real and that people are suffering and need help. They along with all the other medical specialists are working and educating
themselves to find solutions that will treat and manage PCS.
Do not waste any time with the Doctors that look at you with the “ you are crazy” look. But remember Doctors can’t do it alone, we have to help ourselves too as the problems we experience are many!
Personally I have bone and muscle pain, swelling, numbness and tingling along with oppressive debilitating fatigue, migraines, eye migraines, brain fog, memory and concentration challenges, sleep problems, constant drainage, shortness of breath, continuing taste, smell and balance issues along with a “myriad” of unexplainable weird things that my body experiences daily. These are some of the challenges I try to deal with, face head-on and work thru with as much grace and dignity I can muster everyday Post Covid. (Some days my positivity works some days it doesn’t Lol!) It is overwhelming, but I just keep trying to put one foot in front of the other just like the thousands of others like us that suffer from PCS. We are fortunate, we survived Covid and sadly so many didn’t. I know I’m blessed as I have the love and support of an awesome family, my daughter, mom and brother are my strongest supporters, I wouldn’t make it without them, along with
several good friends.
Just keep trying to find answers and good Doctors. Surround yourself with good people!
Keep moving, take care of yourself, rest when you
need to and know that we all will get through this together. We are definitely worth the fight!