Brachioradial pruritus. (severe itching on forearms and neck, no rash).

Posted by Patrick Cotter @patrickcotter, Mar 19, 2012

Does anyone know of this. I think its rare but does exist. My neurologist does not know about this. I have compression between my c5 and c6 cervical disk and have had alot of sun damage to my skin.

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Kay Rovik | @anniemaggie | Oct 10, 2019

I wouldn't personally. My DO Dr does gentle manipulations. She was relaxing the tightness in my shoulder. She relaxed a pinched nerve in my neck, I had no idea what happened but my arms were red and blotchy looking for a couple of weeks. No itch. Then last Friday looked at my arms, cleared up, all that was left was the 30 yrs of scars on my forearms. All gone, cleared up. Always weird things with me. I lost all the hair on my arms, then it grew back. But part of my arms are now peeling so putting cream on twice daily.
Because this condition is from cervical vertebrae issues it only makes sense to fix a pinched nerve. All the wasted money on massages, she did this in one minute. I also had problems on my face, itching for years. Bleeding that totally disappeared too. Perfect skin now.

ilyne | @ilyne | Oct 11, 2019

In reply to @lorifig1965 "How long before it's released to the public and is there a study going on if..." + (show)

I have no idea. I wrote to the company and never got a response. I will try again.

ilyne | @ilyne | Oct 11, 2019

In reply to @lorifig1965 "This is exciting news when will it be available in the US" + (show)

I h ave no idea. I had written to the company and got no response.

needahelp | @needahelp | Oct 11, 2019

In reply to @ilyne "HI Thanks for the info. My wife uses no cosmetics, shampoo from health store, soaps that..." + (show)

The health food store lotion made my arms burn! I’m trying the Skintifique brand & hopefully it will help. I just bought some No Nothing hair conditioner. It isn’t organic, but it is nickel & fragrance free, so hopefully it will work for me.

ilyne | @ilyne | Oct 15, 2019

In reply to @ilyne "I h ave no idea. I had written to the company and got no response." + (show)

Got a reply!

Thank you for the interest in our SAN711 program.
Unfortunately the clinical evaluation of the product has not been initiated yet and trials in Brachioradial pruritus will probably not be started within the next 3 years.

BR Jorgen

Jørgen Drejer, PhD

CEO, Saniona AB
Baltorpvej 154
DK2750 Ballerup
Denmark

+45 20289705
jd@saniona.com
http://www.saniona.com

ilyne | @ilyne | Oct 15, 2019

In reply to @lorifig1965 "How long before it's released to the public and is there a study going on if..." + (show)

Note from company:

BR Jorgen

Jørgen Drejer, PhD

CEO, Saniona AB
Baltorpvej 154
DK2750 Ballerup
Denmark

+45 20289705
jd@saniona.com
http://www.saniona.com

lorifig1965 | @lorifig1965 | Oct 15, 2019

In reply to @ilyne "Note from company: Thank you for the interest in our SAN711 program. Unfortunately the clinical evaluation..." + (show)

I also got the same reply. Well another 3 or 4 years of suffering!!

ilyne | @ilyne | Oct 16, 2019

In reply to @lorifig1965 "I also got the same reply. Well another 3 or 4 years of suffering!!" + (show)

Wife was very disappointed. it would be an orphan drug for an orphan disease. Not a lot of money to be made. Such is life.

lorifig1965 | @lorifig1965 | Oct 17, 2019

In reply to @ilyne "Wife was very disappointed. it would be an orphan drug for an orphan disease. Not a..." + (show)

Not understanding what you are saying?

ilyne | @ilyne | Oct 17, 2019

In reply to @lorifig1965 "Not understanding what you are saying?" + (show)

I am saying it is going to be years before this treatment is available to BRP sufferers, based on the response from the Drug Company developing it.

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