Good morning, @vmarra, the best thing that’s happened is that your mom is now in the care of Mayo Clinic. I know you’re in panic mode with this news and it’s understandable anytime there’s a diagnosis of a blood cancer. But your mom is in the best place to have this treated…and there are treatment options. So I want you to take a deep, slow breath and let it out. Your mom is in good hands.
What your local hospital missed is no longer relevant. It’s what happens going forward. Since your mom is at Mayo, I’m suspecting she’ll (and you) will have a consultation with a hematologist who will go over your mom’s current health situation, the diagnosis and the treatment plan. If it isn’t convenient for your mom to have the care done at Mayo, the Clinic is awesome with establishing and coordinating treatment at a local cancer center for your mom. I’ve had this happen and know it works smoothly.
This is a little information from Mayo Clinic’s site for AL Amyloidosis. https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178
Your mom is young at 60 and can have many years of life ahead. I was 65 when diagnosed with a very serious blood cancer called Acute Myeloid Leukemia…I’m now 68, cancer free and living my best life. Thanks to my team at Mayo-Rochester. So I want you to know there is hope for your mom. Mayo is a place of hope!
I’m also glad you found Mayo Connect. You and your mom are never alone here. I’ve found other discussions with members who have AL Amyloidosis. Whenever you’re ready here’s a link to some of those conversations.
Diagnosed with AL Amyloidosis. What can I expect?
https://connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what/
Are you meeting soon with an hematologist/oncologist at Mayo? I’ll be sending positive vibes for good news. Please let me know, ok?
Which Mayo Campus are you visiting?
This was so helpful. We met with Dr. Gertz and we were at Mayo Rochester. He has not yet gone over her test results yet with her. They were just done yesterday. I just looked at them. I’m not a doc but have engrained myself in any and every bit of knowledge I can find