← Return to The Paradox of Osteoporosis Irreversibility

Discussion
Comment receiving replies
@kilh

@contentandwell It has been over a year since this post. How are you and tymlos doing? My last dose was in Feb. 2022, when I went to the hospital er and stayed for almost 3 months. Hope you found a cheaper Pharmacy, for the price is outrageous. I almost made it a year. I have a Dexa and echo coming up soon. These will tell me my progress. But the meds I am on have really bad side effects. Please bring up to date on how you are doing? KLH

Jump to this post


Replies to "@contentandwell It has been over a year since this post. How are you and tymlos doing?..."

Was the hospitalization related to 'last dose' or just concurrent?

Hi, @kilh
I am still on Tymlos, I am on my 17th month right now. I'm doing OK. I hear about side effects like bone/muscle aches and "puffy belly" but I'm not sure if the leg aches I am having are related to Tymlos or to age. I do think the "puffy belly" is definitely related to Tymlos because I stopped Tymlos for about 5 days or so a while back and I did lose some of it. Some days I feel like a Buddha. I have always had the type of body where I am bigger through the middle but it's worse now.

I will not be having a DEXA until around December. I was considering stopping it at the end of the year due to the beginning of the year costing so much when my yearly deductible gets added into the regular monthly cost but then with some googling I read that there is often a big improvement between the 18th month and the 24th month so I will probably hang in there. Heck, I've paid so much already what's another couple of months? I will probably use the Medicare calculator at the end of the year to see if I can find a more favorable Medicare D plan. Using Tymlos for the whole year made the one I chose the least expensive overall.

I will be interested in hearing what your DEXA says. I'm sorry that the meds you are on are causing such bad side effects. Is there an end in sight for those medications or are you stuck with them long-term?
I don't think ECHO is available anywhere close to where I am but its use is a bit controversial. Many feel it is no more help than the DEXA, but of course many feel it is superior to the DEXA, so who knows?
JK

@contentandwell Thanks for the reply. How are you doing this summer with all the heat and we have not had much rain? Still on Tymlos and how is your progress? I do not know how to proceed but wait till I see my PCP. Hope you are staying healthy and well. Let me know how you are doing. KLH