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Heart Rhythm Conditions | Last Active: Jul 6, 2023 | Replies (36)
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Hello @kudzu. I am very sorry about your recent diagnosis. I wanted to get you connected with other members who may be able to provide you with some support so you will notice that I have moved your post into an existing discussion on Amioderone here: https://connect.mayoclinic.org/discussion/need-advice-on-amioderone/
Members such as @thecrawf3 @tsch and @rossboyd may be able to offer you some support.
When is your next follow up to learn more?
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I’m seeing the cardiologist this am. I will also try to talk to someone at the hospital to see what’s going on. I have anxiety/depression issues and I cannot wait for answers. All I can think about right now is that I may live only a couple of years and this may not be the case. I’ve been googling and it sounds like any type of restrictive lung disease is fatal.
I’m going to see someone at the pulmonology dept at Mayo in a couple of weeks.