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The good and bad of Prednisone for PMR
Polymyalgia Rheumatica (PMR) | Last Active: Jul 23, 2022 | Replies (32)Comment receiving replies
Hi @thenazareneshul, 40 mg of prednisone is an unusually high dosage for PMR (it's usually 20), but in the ballpark for GCA. My rheumatologist told me that some people are on high dosages of prednisone way too long. When my mother-in-law had GCA, the internist she was referred to told her she had a virus, to go home and she'd be better in 3 months. She would have been dead! I had a close friend, a doctor, to whom I sent her symptoms. He referred her to a better physician who diagnosed GCA. She was languishing for months and some relatives thought it was all in her head. People with hidden disabilities are often considered hypochondriacs or malingerers. There's a voluntary "Sunflower" program in which people with hidden disabilities can wear sunflowers to show they need assistance when travelling.
In this forum we share our experiences with others who have been through the same and do not have to worry about being labelled crybabies.
Good for you that you broke through the bonds of "can't do" and went out and did! Is Scotland still beautiful? I was there, many years ago, in Oban.
Take care.
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I think that was the problem, we didn't have a Rheumatologist available for anyone there. And when both my feet broke, believe or not, my ins didn't cover setting them. Nothing. I've had small doses of steroids, like injections and have done very well with those. Except I overdose much sooner than those doctors thought I would. The rest of what you've shared is very helpful, too. Thank you. A real blessing. Scotland is, and was, wonderful. We stayed in Glascow and in a village, in a mother-in-law apt, on a pasture just outside of Lockerbie. A place with much history in both places. Hugs to you. Thank you.