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Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)

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@loribmt

It’s great to hear you’re feeling a whole lot better and finally getting some sleep. Indecision can sure mess with a person’s head! ☺️
Your oncologist is right, don’t worry about crossing that SCT (stem cell transplant) bridge until you come to it. And yes, I did have a allogenic stem cell transplant using an anonymous donor who matched me, 10/10 bio markers. I owe that young man my life. Without his generous donation to a complete stranger, (me) 3 years ago, I would not be here today. So please, don’t fear the worst. While the SCT is not a walk on the beach it is doable and can give you a second chance at life. If and when you get to that point, I’m happy to be your guide as I got quite an extensive education during my experience. I had my transplant at Mayo-Rochester. That’s why I referred to it as my home away from home…the Mother Ship! It is truly a place of hope! You’ll be in amazing hands there.

I’ve not stayed at the Hyatt House but you’ll be very near the Clinic and an easy walk. There’s no shortage of great restaurants, lovely museums, stores, parks, etc, nearby as well. Pardon me if you’ve mentioned this before, but have you ever been to Rochester previously?

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Replies to "It’s great to hear you’re feeling a whole lot better and finally getting some sleep. Indecision..."

Thank you so much for offering support should I need an SCT, Lori, it's really appreciated. Have you ever heard of anyone not needing one after treatment?

This will be my first time to Rochester. Coming a few days prior to my first appointment to have a little time to learn the lay of the land.