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The good and bad of Prednisone for PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jul 23, 2022 | Replies (32)

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@thenazareneshul

Hi,
Well, since you asked, I too was completely uninformed about the side effects to the Prednisone for a long time. It was wonderful, having the prednisone to counter the PMR . I too have PMR, and my understanding of it is putting it into remission is the goal. There are two treatments, one is finding what is triggering it (if that's possible) and the only other one is prednisone. I'm not aware that it can be cured. Though, mine is now in remission. It was put in to action by an allergy to cold. Like outdoor cold. I lived in Alaska. The Prednisone worked great on it, but I never was able to reduce it and then find a decent lowe does to stablize it. It was an Opthamologist, covering for the local big box store's Optician, who caught my prednisone caused glaucoma. Prednisone (and other steriods) can cause glaucoma, which can made you go blind. It's not to be taken lightly. Prednisone can also can thin your bones. Maybe a little is not big deal for you, for me it was a problem. By the time a new PCP told me I'd probably have to move down out of Alaska, for my health, my feet had both broken. Believe it or not, my ins company didn't cover feet, there. Then, three of my ribs broke while my eye doctor was getting upset with me for not quiting prednisone, because she knew the glaucoma was slowly making blind spots in my left eye. So, I woke up and smelled it wasn't roses anymore and moved on down, out of Alaska, to WA. There is a laser surgery for the kind of glaucoma I have (open angle). It cured the glaucoma for 5 years, now it's back, and I have to run through the same tests in the run up to the same laser surgery/surgeries again. Oh, and by the time I left Alaska, I had 6 broken ribs and both feet broken. A little trip and fall could do it. One foot had to be rebroken and set with metal wires through it. I hear you on the thin skin. Best to not take any aspirin while that's going on. My left forearm is covered with little white lines from all the times I'd hit some doorknob and the skin would just peal back. Get yourself a box of "butterfly" bandages, run the arm under water to put the skin safely and cleanly back where it belongs, pat dry and put the butterfy bandages on them. Get your eyes checked, with pressure readings, and get a bone density test. Those sides effects can do a number on you.

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Replies to "Hi, Well, since you asked, I too was completely uninformed about the side effects to the..."

Hi @thenazareneshul, I'm sorry to hear of your difficulties with prednisone. PMR is an autoimmune disease with genetic markers. Sometimes an accident or trauma can cause the immune system to go into overdrive. My PMR symptoms started with an ankle injury, my aunt's started with an injury to her back.
What dosage of prednisone did you start with and what was your tapering schedule like? I was prescribed 40 mg for Giant Cell Arteritis and tapered down by 5 mg every two weeks after that. Now I'm at 2 mg with no symptoms (knock on wood) and a normal CRP. I do have osteoporosis, but I had a dexa scan right after starting prednisone. I suspect I lost bone density the year I was incapacitated with PMR because prior to that I was physically active, but there is strong history for osteoporosis in my family.
It probably was best for you to move to WA. That must have been difficult! I'm fortunate to have good care in Hawaii. Wishing you the best!