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Anyone else have Mantle Cell Lymphoma?

Blood Cancers & Disorders | Last Active: Jul 14 6:52am | Replies (89)
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@loribmt

Oh, what a relief to know you’re heading to Mayo! I know from experience the peace of mind that we feel when we reach the Mother Ship…hope embraces you. ☺️ I can tell you’re feel a lot better about all of this now after all the indecision and second guessing.
Safe travels to Rochester! It’s my home away from home! Please let me know how everything goes for you. All set with lodging?

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Replies to "Oh, what a relief to know you’re heading to Mayo! I know from experience the peace..."
nhlbob | @nhlbob | Jul 9, 2022

I do feel a whole lot better and have been able to sleep which has been great. The one thing still lingering for me is whether I'll require a stem cell transplant after the BR treatment if that's the route taken. The oncologist said we'll cross that bridge when we get to it and don't need to worry about it at the moment, but my OCD keeps reminding me there's still a potential worry ahead. Survivors I've spoken to have said SCT's are not pleasant which scares me. Did you go through one?

The lodging is set, I'm staying at the Hyatt House hotel. Ever stay there?

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