Hi, @windyshores. Thanks for your reply, which I think is a reply to my post starting "Yes, I got both hips and lumbar spine scanned." It's hard for me to follow these threads.
To answer my age: I'm 66. I'm on Medicare. When I check http://www.caremark.com to see my drug coverage with my SilverScript Choice Medicare Rx plan, I see the following (NOTE: Other formats of the alendronate varied in terms of coverage; my primary had suggested the 70mg weekly tab):
- Alendronate Sodium 70mg tablet: $0.00 for 84 days (mail order)
- Tymlos Miscellaneous Inj: NOT COVERED. See your doctor for alternatives.
- Forteo 600/2.4 Inj: My cost: $1,431.08 for 28-day supply.
- Prolia 60mg/ml Solution: $870.50 for 30 days (29.02 per day).
I can see why people just go with the bisphosphonates! Even if my recent toe "dislocation of interphalangeal joint of lesser toe of right foot" mere weeks after my osteo diagnosis counts as a break, and I don't know if it does, possibly (though unlikely anyway per your stated criteria) enabling me to qualify insurance-wise for an injectable (or patch if a third-party manages to get involved in Tymlos's discontinued patch trial), I don't think I'd go with injections at this cost. I'll start looking at what other Medicare Rx plans would cover.
What Rx plan do you have that covers Tymlos injection?
Attached is my chart I made last month of my 4 Dexa scan results, dating back to 2006. Hopefully I transcribed the numbers right; I worked hard with a Dexa-with-TBS facility rep to get the Hologic-vs-GE terminology right. I message'd the chart to my primary in June, and she wasn't all that interested. Her reply: "Your chart is a great summary and recommend you review in detail at your osteoporosis appointment. My understanding is you cannot compare different machines so that may be part of the variance between the Scripps and UCSD reports." My "osteoporosis appointment" (endocronologist) is in October.
Thanks for your suggestions about Keith McCormick and Lani Simpson. I like them both; I even had an email exchange with Keith McCormick -- to help clear up a TBS-related question I had (I haven't had a TBS score yet; I unfortunately became aware of TBS after my May scan). And I've been reading Lani Simpson's No-Nonsense Bone Health Guide book on my Nook.
I don't see any comment in my May report that says that either of my femur neck results should not be considered reliable. The comment for the left femur, for example, the problematic one (-2.8) only says "The left femur total demonstrates an interval change of -10.1% from the most recent previous/baseline study of 1/4/2016, which is a statistically significant change.
I noticed that my 2016 Dexa scan that this recent alarm is based on has some really good numbers and might be an outlier. I'm hopeful that the endocrinologist's review in October might reinforce that. In 2015-2016 I was doing a *lot* of physical therapy for my lumbar spine vertebrae instability, so I wonder if the great scores were in part because of those months of weights and pullies.
Your cancer and fracture saga is quite the ordeal and I can see how it would inform your concern my bone situation, and I super appreciate it.
Thanks again.
So your femur neck is an outlier. Is it possible you have osteoarthritis there? Is there some other reason for those scores? It's strange and puzzling that most of your scores are so good and then those two osteopenic and osteoporotic respectively.
Honestly except for that one score, you are in pretty good shape. The "significant" change in the femur neck was over 6 years and most of us lose bone density after menopause, to some extent. But again, is there something else going on?
Fyi Tymlos has an assistance program. I get mine for free for 18 months. When the time comes for you, you just contact Tymlos Together. The application is on the Radius site but Tymlos Together gives you a rep who handles it.
It seems you have a mystery to solve and I hope you have good docs who pay attention.